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  1. Esther12

    UK CFS/M.E. Research Collaborative [CMRC] conference, 10th and 11th March 2020

    Jessica Bavinton's Vitality 360 liked that tweet - bleurgh!
  2. Esther12

    Concerns about Cochrane

    He seems to ignore the fact that covid-19 is more infectuous than normal flu, as well as more deadly. That combination is a reason for concern even if there's also still a lot of uncertainty.
  3. Esther12

    UK: Priority Setting Partnership for ME/CFS

    So much depends on the specifics - it's easy for things like this to sound good in principle, but end up being shaped by the preferences of those who know how to play the system (which tends not to be patients). If Action for ME are playing a leading role, that leaves me more concerned too.
  4. Esther12

    EUROMENE - Final Conference Common strategy on research of ME/CFS will take place on 12 - 13 March, 2020 at Rīga Stradiņš University, Latvia

    Do you know if there will be opportunities to engage? Is it particularly worth watching it live rather than watching videos/hearing summaries later?
  5. Esther12

    Embodied: The psychology of physical sensation (2015) by C. Eccleston

    That's not much to judge on! There were some really annoying and thoughtless things in there, but there were bits of critical engagement as well. I wouldn't be too sweeping in judgement=.
  6. Esther12

    Mike's EU Marathons

    Thanks for everything Mike. Sorry to hear this has got in the way. You certainly shouldn't feel like you'd be letting anyone down by not making this big change to your plans when you didn't think it was the best idea. All your work has been amazing, and is very gratefully appreciated.
  7. Esther12

    News from Scandinavia

    A new one from the same person, even worse than before. He gives the impression of being totally caught within his own ill-informed prejudices. https://www.varden.no/meninger/me-aktivisme/ google translate...
  8. Esther12

    FINE trial patient booklet 29/04/05 Pauline Powell

    Every time I open a FINE document... I was just getting annoyed at this bit: "you cannot relapse because you now know how to combat it. You understand what happened to your body during CFS and why a controlled graduated activity plan and regular night-only sleep pattern was necessary. You...
  9. Esther12

    Coronavirus - worldwide spread and control

    https://www.thisismoney.co.uk/wires/reuters/article-8079459/COVID-19-epidemic-pushed-concerted-approach-WHO.html
  10. Esther12

    Coronavirus - worldwide spread and control

    Some of their briefings sound like they're now aiming to have infections peak during the summer, when the NHS is under less strain, and would like to have it 'move through the population' before we get to autumn. I'm a bit surprised they seem to already be shifting to that plan rather than...
  11. Esther12

    Bias due to a lack of blinding: a discussion

    I guess it's possible that they googled your name and saw this thread? That could explain the delay in telling you they didn't want to share that information about their work.
  12. Esther12

    MEAction: INVITE YOUR DOCTOR TO LEARN ABOUT ME – MEDICAL EDUCATION EVENT IN LONDON, 1st April 2020

    It's slightly unfortunate timing (even ignoring Fool's day) but lets hope corona pandemic doesn't mean doctors are all busy elsewhere. Thanks to everyone working to improve the way things are in the UK.
  13. Esther12

    Bias due to a lack of blinding: a discussion

    Thanks Michiel. That's annoying - the way they class trials as blinded or unblinded is a vital part of the paper so failing to let others check their assessment really makes it difficult to have an opinion on their findings. Given the way some people are talking about the importance of this...
  14. Esther12

    Thesis: "Women on sick leave for long-term musculoskeletal pain: Factors associated with work ability, well-being and return to work", Mamunur Rashid

    That press release doesn't seem particularly careful. So there's an association... seemingly that's now enough to prove causation? Those with cancer who believe they're more likely to survive are more likely to survive. That association had been presented as evidence that positive beliefs about...
  15. Esther12

    General thread on functional disorders in Denmark

    I want to read them... I don't want to read them.
  16. Esther12

    Denmark: Article in Videnskabdk: Chronic Fatigue Syndrome: Does exercise help, or does it make people worse?

    We knew about the planned Larun review on causes to ME... it features some of the usual bullshit artists: https://www.fhi.no/prosjekter/systematisk-litteratursok-med-sortering-om-arsaker-til-kronisk-utmattelsess/ Some more details (only a brief summary in English)...
  17. Esther12

    Berkeley Wellness: When Medical Symptoms Are Dismissed as "All in Your Head" (David Tuller interviews Maya Dusenbery)

    People were commenting earlier about sensing an attitude of misogyny in Edward Shorter's work, but maybe he just wants to be abused by women! Maybe. Who knows, but some of his recent blogs seem a bit revealing...
  18. Esther12

    Outcome measurement in functional neurological disorder: a systematic review and recommendations, 2020, Pick et al

    Their recommended outcomes (table 4) are all self-report questionnaires, aside from healthcare resource use. So the aim is to get FND patients to fill in questionnaires a bit more positively and bother doctors less?
  19. Esther12

    News from Scandinavia

    via google translate: That Helland again? Weren't Vogt's Recovery Norge group praising themselves for the great talk they gave to Norway's disability welfare (sorry- I've forgotten the name) department?
  20. Esther12

    Request for help with possible TV documentary on ME

    1. I often see people commenting on this on forums, social media but have no specific recommendation. 2: While he can seem embarrassed at being the default choice and often point to others who have done a lot of valuable work, I think Tom Kindlon is the best example of a patient who has been...
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