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You're already know what you're talking about though! There's nothing impressive about Schröder's writing, but I worry that it's more effective as propaganda targeting people who don't know the details when he, and people like him, have the 'psychsomatic vs biological' thing to hide behind.

Where have I held psychosomatic explanations to a lower standard? I've not seen any specific psychosomatic approach to CFS that could be presented as a legitimate way of treating CFS. Any specific claims that a vague, contradictory and not support by reliable evidence should be criticise...

I think it's almost inevitable that there are some thoughts and behaviour that can worsen most illnesses. Do you not think that there are any approaches to you illness that could make things worse for yourself? In the case of XMRV there was a claim that a specific test could identify XMRV at a...

I'm certainly not saying that we should not question unquestioned dogma, or that I feel uncomfortable doing so. I'm just pointing out that tying criticism of work like PACE to concerns about viewing CFS as a 'psychosomatic' illness (particularly when expressed in a simplified or imprecise...

I think it's a mistake to focus on the illness model, when it's almost always been presented as likely to be incomplete and work like PACE is presented as providing a 'pragmatic' approach to CFS. A lot of criticism of their use of various models seems to get things wrong too, partly because it's...

What specific claim about psychosomatic illness is their weakest spot? I'm not saying that we should let them dictate what we're allowed to discuss, but I do think that we've seen, time and again, "whenever disputes are able to be simplified in terms like 'psychosomatic or biological' it ends up...

Once again, we see how any use of a term like 'psychosomatic' is unhelpful, unless it's a direct quote from someone else. Whenever disputes are able to be simplified in terms like 'psychosomatic or biological' it ends up stengthening those who want to downplay the problems with research like PACE.

Yet here they cite that paper as part of their justification for a cut-off of 18 using an unmodified questionnaire?

Maybe there is a subgroup of CFS patients suffering from "health anxiety/hypochondriasis", but this seemed a frustratingly pointless read. Even if the questionnaires were all accurately measuring what they were intended measure, problems with the design would still make it pointless. As it is...

Personally, I find MEpedia to be a hugely valuable resource, especially for finding links/info that I'd forgotten the details of and I'm very grateful for the work others have put in that has made my life so much easier. Having said that, I never look at any of the biomedical research areas so...

I've not been able to keep up with all the discussions here, but the claims about the test for determining if fusion surgery is indicated did stand out to me as important (particularly as I'd previously assumed this judgement was being made on the basis of mri scans that could have been assessed...

Only reading the abstract, but: That seems a bit of an odd way of phrasing it. How bad was this documentary?!

This tweet of hers was posted as Montgomery retweeted it: Once again, the BMJ saying all the right things about patient engagement in the abstract, and then being driven by ignorance and prejudice when ME/CFS patients dare point out truths that go against researcher's interests. A decade...

To me, this whole PROM project looks hopelessly corrupted by the researchers involved. A waste of time and money imo. This is of some interest given the SMILE trial's outcome switching, and the way verified school attendance was entirely dropped. @dave30th The paper cites SMILE, and some...

I was just going to post something else in this thread, and finding it made me wonder if asnyone had an answer to this question... Also, it seems the Bristol FITNET pages have been updated, including a new FAQ with their interpretation of the previous FITNET study...

Thanks for doing this Trish. I haven't looked at the details of this research, but to me the response from Wright is pretty worrrying. That seems to imply some bizarre faith in the measures being used. Oh great. IMO it was probably a mistake for Trish's letter to have framed concern about...

Thanks. I find that useful to know re the likely accuracy of the notes and chances of errors. Thanks for attending and letting us know what was said - I hope it didn't take too much out of you.

Thanks for all that info @Kalliope Interesting he brought up PACE on his own, and is still heaping praise on it (it probably is a better piece of research than he could manage to design). I don't suppose you recorded it?

Thanks so much for everything Mike. I hope you and your family have a good time through the holiday season.

Thanks for posting. Good to show support for the MP who has done the most to speak out on PACE issues.