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What a ridiculous statement from Sonya. Could there have been any way to prevent researchers from responding to concerns? What about the HRA's work makes Sonya think that they are the appropriate channel for concerns like this? Is she really impressed by the quality of their analysis of PACE...

I wasn't sure if this was worth posting. Christopher Bass on 'What lawyers should know about Somatic symptom disorder ': https://www.2tg.co.uk/wp-content/uploads/2019/05/2TG-Seminar-Handout-Managing-Chronic-Pain-10.05.2019.pdf A part of: Personal Injury Seminar The Effective Management of...

Welcome, and thanks for the explanations - I think that a lot of it is down to our own subjective judgements. A few things where we might have been misunderstanding one another?: I see - so you're writing as if the 2019 publication and the 2015 publication are really the same review? To me...

I feel a sense of dread about another UK cover-up. There have been so many examples recently showing that the truth really doesn't seem to matter here.

Thanks again Michiel. I've really appreciated all the work you've been doing on this. A few quick points, rushed out before I go to bed: Just in terms of emphasis, I think that I'd have started with your section on 'a lack of blinding' and also made clearer that when you talk about outcomes...

An inevitably depressing thread. We need a post that links to all the the good Cochrane posts @Michiel Tack has been doing!

For so many important issues it seems that Cochrane can just let Larun choose to ignore them. I've never understood what was going on there. Given what else we've seen from the PACE researchers it's difficult to assume that there's no reason for concern, but I'm also not sure there's a strong...

Just saw this, with some interesting replies, on the Hyland body retraining approach:

To be fair, I know some people who put a lot of time and effort into trying to get AfME to improve when Sonya first came onboard, and most of them seemed to come away thinking that it was only public pressure that was of any value as AfME have in-built problems which meant that the truth didn't...

While expecting others to have confidence in their own indefensible subjective judgements. It seems that CFS research has done a better job of providing insight into the problems with CFS researchers than CFS patients.

This is a bit of an abstract post of little relevence to the Cochrane review! I'd normally agree with "nobody knows better", but I'm not sure how much we should "respect patients' ability to describe their own experience". It seems like humans often aren't very good at that sort of thing. If...

“When healthcare professionals who do not specialise in #MECFS treated people with M.E. with graded exercise therapy there was a considerable increase in a #pwME experiencing a worsening of symptoms.” Where does that "who do not specialise in #MECFS” come from?

Would/could they exclude Jason for baseline differences (are those differences apparent for 6mwt data?)?

With Jonathan Sterne, from Crawley's SMILE trial, and Julian Higgins who is a co-author with Crawley on this still unpublished review of 'recovery' in pediatric CFS: https://www.crd.york.ac.uk/PROSPERO/display_record.php?RecordID=9303

This is the summary they give for their MUS section: https://actionforme2019conference.eventzilla.net/web/event?eventid=2138742076

We're still waiting for his analysis of PACE, that he promised about four years ago, aren't we? We doesn't seem like someone with an imprssive grasp of the details.

Thanks again for all your work on this @Michiel Tack One reading of that summary is that if the authors of a review were looking to report positive results for an objective outcome they could probably find a way to do so if they were careful in the way they grouped together objective outcomes.

Just to slightly complicate this point, I have heard that Wallman considers the treatment tested here to be closer to pacing that GET. It could be that is just said to people critical of GET? Or it could be that it is misleading to lump it in with GET trials. One problem with 'exercise therapy'...

It can still be a useful way of trying to think about and understand their work, but it's important to also remember to be critical of the preferences and judgements that lead to them conducting analyses of such questionable value. It's probably going to take us a while to get to grips with the...

I don't think we have a direct outcome for fatigue. That absence doesn't make the Chalder Fatigue Questionnaire any more valid though! I'm sure I was recently reading something about the importance of showing a questionnaire was a valid measure of what it was supposed to be measuring, and...