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  1. NelliePledge

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Yes good point @Sly Saint hadn’t dawned on me that could well happen
  2. NelliePledge

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Pity but understandable. I suppose the current circumstances at least mean new people won’t be attending GET sessions in person - hopefully not online/phone either.
  3. NelliePledge

    Coronavirus - worldwide spread and control

    So it does look like everyone with mild symptoms will be getting tested from now on :whistle:
  4. NelliePledge

    Coronavirus - worldwide spread and control

    So now mild cases Charles and Alexander have been tested can we assume that will be the approach for all with mild symptoms.
  5. NelliePledge

    Question: Coronavirus & home sewn masks?

    I don’t know anything about sewing but how about adding a pocket that vacuum filter or kitchen roll could be placed in and then removed to be binned before the mask is washed?
  6. NelliePledge

    Hand Sanitizers

    Hey what’s wrong with being purple :rolleyes:
  7. NelliePledge

    Coronavirus - worldwide spread and control

    Absolutely - with football matches you queue up to get in and are patted down by security then you go through very tight turnstiles which are made of metal and have to be pushed to get through. Then straight into the crowded concourse where the food and drink is served basically like walking...
  8. NelliePledge

    Coronavirus - worldwide spread and control

    Right. When I was outside Kings Cross St Pancras at 9 am on 7/7 the guy with the high viz and the megaphone wasn’t saying ‘please could you very kindly avoid the area’ he was saying ‘leave the area immediately!- walk North‘ nobody was under any illusions about the seriousness of the situation.
  9. NelliePledge

    Coronavirus - worldwide spread and control

    I’m having some painting done on the outside of my house on Monday. Stood on the drive talking to the painter he’s able to do it then due to indoor jobs being cancelled. Thinks it might blow over in a couple of weeks. I felt unable to let it go so I pointed out we are 2 weeks behind Italy on...
  10. NelliePledge

    NHS England now lists ME (not CFS) under neurological conditions but puts it in potentially unhelpful category

    It would be good if there were PWME Nurses able to get involved with advocacy and tackling the training aspect like Nina Muirhead is doing with the Doctors. Nurses for ME like physios for ME are doing.
  11. NelliePledge

    NHS England now lists ME (not CFS) under neurological conditions but puts it in potentially unhelpful category

    May not be perfect but when it then comes to practical stuff like getting surgeries to give flu jabs, applications for blue badges from people who don’t get PIP, being on a list like this could make it more difficult for bureaucracy to reject requests from PWME.
  12. NelliePledge

    UK: Article the Guardian:Benefits assessment suspension does not go far enough, says charity

    A lot of people who have no previous experience of the welfare system are going to be getting experience of it.
  13. NelliePledge

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Needs to give herself a good talking to to sort out her unhelpful beliefs about fatigue before it goes too far.
  14. NelliePledge

    #MillionsMissing 2020 in Germany

    I reckon paid advertising on digital media and/or TV and Radio maybe local radio/ smaller TV channels would be a better investment to reach people than billboards. No idea of costs & how achievable tho. Also as mid May is expected to the peak of the virus here maybe the public could get put...
  15. NelliePledge

    UK CFS/M.E. Research Collaborative [CMRC] conference, 10th and 11th March 2020

    Hopefully they are noticing the shift in emphasis and learning something from the presentations.
  16. NelliePledge

    Coronavirus - worldwide spread and control

    A minister in the UK health department is self isolating, has had meetings with the Health Secretary and been at the same event as the Prime Minister. I suspect they might be taking it a little more seriously now...... https://www.bbc.co.uk/news/uk-51827356
  17. NelliePledge

    UK CFS/M.E. Research Collaborative [CMRC] conference, 10th and 11th March 2020

    I don’t blame you it would be a nightmare to be caught in quarantine away from home.
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