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  1. NelliePledge

    Charity funding

    On this basis the people making money out of CBT should be pumping money into ME charities that support it :whistle:
  2. NelliePledge

    ME/CFS services in the United Kingdom

    I’m hearing that people in my area are being offered GET through the reorganised NHS Service which is community based alongside pain service as opposed to previous hospital based (no doctor involved) service which had moved to a PACE lite management programme approach. Seems the reorganisation...
  3. NelliePledge

    Efficacy of supplements

    It’s so difficult to know if a supplement is making any difference to me. I think I’m fairly sure magnesium helps as I’ve run out a couple of times and not realised and then after 2 or 3 days wondered why I was aching more. But changes could be for many other reasons related to activity levels...
  4. NelliePledge

    Use of antidepressants for/with ME/CFS?

    Maybe ask if you can try nortryptiline it’s supposed to be less of a sedative hangover.
  5. NelliePledge

    Advocacy context

    im copying a tweet from Alzheimer’s Research UK who are campaigning for 1% of the cost to the U.K. economy of dementia to be spent on dementia research currently it stands at 0.3%. They did a petition and got a minor celebrity to present it at Downing Street. The point I want to make is that...
  6. NelliePledge

    New Zealand: ANZMES

    Sticking my nose in here but I had a look at the ANMES site info under what is ME. In my opinion it isn’t frank enough about prognosis. It is possible to give out a more realistic message as shown by ME Association content on this issue...
  7. NelliePledge

    Journalist looking to speak to people with ME/CFS for an article

    @chicaguapa did you tell her the Guardian doesn’t generally run anything without at least a tinge of BPS ideology
  8. NelliePledge

    Claire Fox (Fiona's sister)

    Meant Claire Fox not chronic fatigue
  9. NelliePledge

    Claire Fox (Fiona's sister)

    Trying to not be party political just highlighting that CF is all over the BBC in the last few days.
  10. NelliePledge

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    If the only input is presubmitted questions what’s the point of using this “meeting” format it might as well or more accessibly for people with ME be done as blog from Unger and guest blogs.
  11. NelliePledge

    Psychometric properties of the Cognitive and Behavioural Responses Questionnaire (CBRQ) in adolescents with CFS, 2019, Loades, Chalder et al

    Interesting this has copies of all the letters to the schools and consent information @dave30th so some of them know they should be providing this
  12. NelliePledge

    Daily Mail: Three ME patients reveal the accusations they have endured

    Credit to the Mail again for publishing a good article on ME and to ME Association patients and Merryns family for working with them on this.
  13. NelliePledge

    Supplements and activity designed to improve circulation - an experiment.

    Ah ok didn’t realise they sweeten it should have thought
  14. NelliePledge

    Supplements and activity designed to improve circulation - an experiment.

    Tried almond milk in a decaf latte during MM never had almond milk before it was very sweet.
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