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  1. NelliePledge

    Retraction of recent large trial on CBT for schizophrenia (2019)

    Presumably these Chinese folks don’t have the same access to the modern day “old boys/girls network” that the U.K. based BPS gang have.
  2. NelliePledge

    Trial By Error: The Lightning Process Is “Effective”? Really?

    Is this journal the equivalent of self publishing? It’s just his Mrs and a mate innit. And he’s trying to pass himself off as an academic surprise surprise
  3. NelliePledge

    David Tuller: Trial By Error: My Most Recent Exchange with Bristol

    Bristol legal department have a busy workload at the moment sadly as there is an ongoing inquest into the death of a student there https://www.bbc.co.uk/news/uk-england-bristol-48354622
  4. NelliePledge

    When Your Body Ages Too Fast

    There’s a certain clique of psychologists and liaison psychiatrists who should take up academic philosophy then because they desperately need therapy for being lost in one hell of a word muddle.
  5. NelliePledge

    Jen Brea: My ME is in remission

    Not sure why dialogue has been concluded @Jeff_w @JenB i thought @MS_esperanza made a good point at #169 that merits a response
  6. NelliePledge

    IiMER International Conference Week London 2019

    How many U.K. based researchers and clinicians go to these conferences other than people from UEA?
  7. NelliePledge

    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    Sad that the NHS and UK universities are providing a gravy train for these charlatans. I mean they’re paying him hard earned taxpayers money to give GPs a few tips on how to word giving the brush off to patients struggling with pain. Absolutely VILE.
  8. NelliePledge

    Jen Brea: My ME is in remission

    Thanks @Binkie4 im glad your GP was fine about it.
  9. NelliePledge

    Jen Brea: My ME is in remission

    At least with Unrest showing several people’s stories any questions raised can have the response one person has found an answer the rest have not.
  10. NelliePledge

    UK: Should ME awareness week and advocacy focus more on the need for research funding?

    The 2 constituents who spoke with the M P who came to our event asked him to get involved with Carol Monaghan and are following up with him. He wants to meet up with our group too. We are going to see if he will get together with local MPs from his party or ideally invite all MPs from our area...
  11. NelliePledge

    Jen Brea: My ME is in remission

    This is my concern for people with ME if they start bringing this up with GPs especially here in the UK they are going to get a very negative response and it will likely be seen as justifying MUS/psychosomatic labelling.
  12. NelliePledge

    Jen Brea: My ME is in remission

    Think it’s concerning that if this encourages people with ME to raise this with their doctors they are going to get a blank stare and more rejection
  13. NelliePledge

    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    In comments E Goudsmidt says don’t bother with MUS. Can’t get my head round the idea that ME being treated as an MUS should be ignored as not worth bothering with. ETA. I see someone has now responded in another comment ETA 2 also does she really imagine DT doesn’t already know the stuff...
  14. NelliePledge

    UK: Should ME awareness week and advocacy focus more on the need for research funding?

    We had MPs coming out for MM events which is a step up on previous years.
  15. NelliePledge

    News from Aotearoa/New Zealand and the Pacific Islands

    They had to adopt the training programme rather than treatment wording after the MEAssociation prompted Advertising Standards Authority cases. I have found adding a link to those cases and or the MEAssociation statement tends to be quite effective in any Facebook encounters with disciples of P...
  16. NelliePledge

    RCPCH conference 2019 abstract: When chronic fatigue syndrome leads to mutism, Moeda et al

    Me too even as a person with ME at the not severe end I get to the point of over exertion where I can still talk but I can’t concentrate enough and find the right words so it’s a big effort to try to communicate. so just have to stop shut my eyes feet up and take a break. But I can be online...
  17. NelliePledge

    RCPCH conference 2019 abstract: Prognosis for childhood CFS is excellent, Robertson et al

    Do these people understand the English meaning of any words they use :banghead:
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