Search results for query: pace trial

As if some kind of trauma has never been treated in any therapy before, some members and me have gone through all that. Aha erlebnis, insights but still had ME/CFS. Physical disease can't be therapied away and certainly not by CBT. Made redundant by NICE the authors find new ways to get...

...not aware that CBT/GET was literally the default approach in formal medical settings of the NHS for 15 years? Did they not come across the PACE trial which tested claims of 'recovery'? The article presents its findings as an extension to existing models, yet describes what is already part of...

Mithriel is right about BPS trials for back pain. Even a Cochrane group concluded that - the title says it all: https://s4me.info/threads/trials-we-cannot-trust-investigating-their-impact-on-systematic-reviews-and-clinical-guidelines-in-spinal-pain-2023-oconnell-et-al.34217/ And, the authors...

So it's brain training, sham brain training and no intervention? Or brain training, active control and no intervention? Looking at the protocol for Donnino's controlled study, I can only tell that effort is being made to match attention, not that we're necessarily going to have sham vs real. I...

Obviously, for the same reasons a drug trial with the same design would be dismissed. There are good reasons why standards in drug trials have tightened up to this level. Open label trials with subjective outcomes run by biased people where the treatment consists of coaching participants are...

There are obvious reasons to do this as part of a real clinical trial, but based on claims and descriptions of "mind-body" ideology, there is no actual reason for this exclusion. If anything, proponents of those models keep repeating how their neuroplasticity models should apply to any sort of...

...drop outs. Previous CFS studies looking at GET and CBT have grievously failed to do this adequately, certainly we have anecdotes from the PACE trial of people dropping out because they were getting worse, being told that getting worse was not possible and apparently their reports of...

...before the trial started and before any patients were recruited. But AFTER the first PACE protocol was put online, which was called 'The PACE Trial Identifier' SW makes the patients sound irrationally and unreasonably 'opposed'. But patients were criticising what was revealed about...

Also from the PACE Trial Identifier section "3.9 What are the proposed outcome measures?" ... "Process variables (measured during therapy and at follow-up): Changes in fitness,[34] physical activity (by actigraphy), the belief that exercise/activity is harmful, the belief that symptoms indicate...

He is looking at this forum as was described as a “humanities voyeur”. We cannot say anything which can change his mind, nor can he say anything which will change the mind of one person here. But that is not all - he is interested in”insular communities” belief systems, group dynamics. He seems...

To be fair, I probably overstated in reaching for rhetorical flair. My apologies. What he actually said: "PACE is radioactive in this community, understandably, but I don't think it "proves" anything about these interventions either. But...I also believe it won't matter if an excellent trial...

In medical illness forums they don’t want to get sued, I’d guess. That’s why they get moderated. But there’s whole internet out there where they can post. Apart from all the places where they’re not allowed to - now that’s a list of evidence I’d be interested in seeing. Names, dates, places...

where did he say this?

I also find it weird that Alan keeps saying that even if the PACE trial was a train wreck, that doesn't mean the interventions themselves don't work. Technically true in the narrow sense that a badly designed trial doesn't disprove every possible version of an intervention. But the burden of...

The German equivalent, IQWIG, also did. They dismissed 97% of trials from analysis because they were of too low quality. They still recommended CBT and GET on the basis of a handful of trials, but when the near totality of an evidence base gets dismissed by authorities this way, you aren't...

So when you say "lots of evidence", what do you mean? If not trials. Hundreds of which have already been done, and systematically showing less effect the more rigorous they are. Well then you're in luck, there have been many such trials. None were excellent, in that they all start from the...

From my perspective, I have "torn to shreds" articles like the PACE trial and the LP study from Bristol and many others that have included egregious methodological flaws. Alan doesn't agree that the flaws I have pointed out are disqualifying. That's his right. So be it. Whether the Gupta or...

...The BPS community genuinely feels like a victim when there is even a slight pushback against this. NICE agreed with the criticism of the PACE trial. NICE also stopped recomming CBT/GET. Was NICE bullied into submission by zealots or was the criticism justified? You should familiarize...

Harvest juicy quotes? My god. We went out of our way to grant retroactive anonymity to anyone who wanted it. When people decided that in fact they wanted to go off the record — when they'd been on — we granted that too. I'm not some kind of monster. In my piece I lay out very, very clearly the...

"The intellectual community here is way ahead of any academic department I have ever worked in" The hubris is off the charts. I'm afraid it's not going to be productive to try to reach people who believe this about themselves, or are encouraged to do so. You seem to be the beating heart of this...