https://www.fda.gov/Drugs/NewsEvents/ucm574725.htm?platform=hootsuite On December 18th, FDA is conducting a public workshop to convene a...
Oh, but I love my fainting couch! How dare you mock it :p [ATTACH]
I very much agree with Dr K, that we need an Army of researchers studying ME. But I personally don’t know how to get from where we are today,...
Newly ill. But this term may be interpreted to mean different things by different researchers. For example, it could mean being ill for 3 years...
Derya, seemed open minded and willing to learn from patients. Also, said he was available thru social media. This seems encouraging.
I take daily parathyroid injections that for a loss of a better term, balance out all three (sodium, calcium, potassium). I once had awful OI or...
I feel you are on the right track, so please don’t give up. I have issues with all three (calcium, potassium, and sodium), but not in the same way...
I would want to see the actual original document, before speculating on it’s contents. This is social media, where anyone can say anything, and...
@Jonathan Edwards It’s such a relief to read your postings. When I finish, I usually think, “Thank goodness, I am not the only one who sees...
Actually a friend of mine has this disorder. In my five year observation of her, n=1, she is more functional than me on a daily basis, and can...
I am not aware of a transcript. Have you tried asking via the website, FB, or Twitter? https://www.unrest.film/contact/...
Thank you for posting about living with chronic pain, which includes tips about how to better navigate the health care system, which when applied,...
Erin did a great job writing the article, while @ahimsa comment was excellent!
Why do people sign up for Kaiser? And once members learn that scripted medicine is a huge failure, then why do they stay? It’s always puzzled me....
I have been taking Phentermine for about two years, and am pleased with the results. It does not cure ME, I don’t think anything does (and I doubt...
Exactly. I don’t think there is a common ageeement, among all the professionals, as to what depression really is. Many drug studies are so vague,...
Unrest will premier on the PBS channel in January 2018 January 8th, at 10 PM http://www.pbs.org/independentlens/films/unrest/
Thanks @Ron for keeping us in the loop and providing the details.
Its good to hear that more scientists and doctors are interested in studying/researching ME; I think we need to encourage this.
@Woolie I am sorry you have little confidence, and can sympathise. ——- Generally speaking.....(not you Woolie) IMO some PwME have been lured into...
Separate names with a comma.
