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    Trial By Error: A Sneak Preview of Next Week’s Post 27 DECEMBER 2017

    Yes, one of the mums from a forum was told by someone who had had CFS that her daughter should do " absolutely nothing" for 3-6 months. She reckons this advice is priceless. She also uses a herbalist for antivirals ( as noone will prescribe them) and sees good results from this. We of course...
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    Trial By Error: A Sneak Preview of Next Week’s Post 27 DECEMBER 2017

    Thanks MEMarge. I' ve also requested a copy of original paper via Researchgate - will provide a copy when in receipt of same.
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    What the Gardasil Testing May Have Missed

    Of the 5 people i know with ME, 4 were linked to vaccinations. I' m pretty sure that immune systems were compromised, and that vaccinations overloaded the system
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    Trial By Error: A Sneak Preview of Next Week’s Post 27 DECEMBER 2017

    Abstract and summary. I can request full paper frm TT as i' m working with Lesley Scott re educational provision
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    Trial By Error: A Sneak Preview of Next Week’s Post 27 DECEMBER 2017

    I think there' s a link on TT website. I' ll see if i can find it.
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    Trial By Error: A Sneak Preview of Next Week’s Post 27 DECEMBER 2017

    Investing time and money. The old school " bedrest" would benefit from a repackaging and promotion - if we had known to do nothing, there would be a better prognosis.
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    Trial By Error: A Sneak Preview of Next Week’s Post 27 DECEMBER 2017

    This uses an old idea - Jane Colby ( tymes trust) and Dr Elizabeth Dowsett did a school absence study in the 1990s ( i think) and it is from this that the " main reason for long term school absence" came about, not EC. From their study it would be ME being assessed, with little chance of CF...
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    Environmental Exposures as a Potential Underlying Factor in Chronic Fatigue Syndrome; a Case Report (2017) Arseneau et al.

    https://www.smithsonianmag.com/innovation/the-toxins-that-affected-your-great-grandparents-could-be-in-your-genes-180947644/
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    Proposed Letter to NICE

    Please add my name, Ann West
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    What the Gardasil Testing May Have Missed

    Apologies - phone keypad, larger fingers and too many glasses of wine -the reporting parameters are weird!
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    What the Gardasil Testing May Have Missed

    Merck had only a 2 week window for adverse effects - anything outwith this was not attributed to the vaccination. Many side effects, falling outwith this period were not noted as such, and this may be where ther are problems .The reporting parameters ate weird.
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    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    It's not just the treatment. Cancer sufferers benefit from many add ons that improve the quality of life ( wigs/ peripheral treatment such as acupuncture/ not such problems with disability benefits/ blue badge) what is the cost of this?
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    Petition for increased research funding in the UK

    I think what we are missing is a coordinated campaign off the back of unrest. The media profile has been raised, we need to capitalise on this. If national coverage is difficult perhaps it has a local base to build from ( similar to Bristol Cable articles). In New Year i will look at getting...
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    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    I think it has its basis in the school study. As usual it conflates chronic fatigue with CFS/ME. Colby and Dowsett did a study re school illness in 1990s which may be more accurate. Higher numbers will justify the need for more research
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    Documents from the SMILE trial

    Does Ben Goldenacre still run this ? http://compare-trials.org/methods Maybe too much of a hot potato to bring in PACE, SMILE etc?
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