Search results

Same with malaria (bad air), and don't get me started on "hysterectomy". "Quarantine" is from Italian quaranta which means 40. That was regarded as sufficient amount of time to isolate patients with serious contagious diseases. Medical etymology is rather fun..

Politiken has an article about a Danish ambassador son with ME. Even with access to resources and the best doctors, he is left with no help from the health care system Politiken: Carl-Johan lider av kronisk træthedssyndrom: "Jeg er ikke træt - jeg er som en mobil med defekte batterier uden...

Huh, I didn't know that. Thanks, @Cheshire

The Lancet is retracting! The Lancet: The final verdict on Paolo Macchiarini: guilty of misconduct In this issue, we are retracting two papers by Paolo Macchiarini and co-authors after receiving requests to do so from the new President of the Karolinska Institute (KI), Ole Petter Ottersen...

It is completely and utterly surreal. We struggle here too, but my heart goes out to the Danish patients.

The Danish newspaper Politiken has asked readers to send in questions to the health authorities regarding the new decision they've made transforming several diagnoses (also ME) into "functional disorder" with GET, cognitive behavioural therapy, anti depressants etc as treatments. The health...

Those quotes were from memory, but I'll see what I can dig up. I'll just edit this post when I find new things that might be of interest, so the thread doesn't get too much distorted.. Here is a letter from last year to the editor by LP coach Live Landmark after prof. Wyller's application for...

This LP coach I am talking about is accusing ME patients for just lying around waiting for a pill instead of taking matters into our own hands. This kind of argumentation and patient blaming has caused enormous damage and made our voices easy to dismiss. Apparently it's more convenient for...

One LP coach in my country compares the course to a diet. It can take time to achieve results, but you can't expect changes if you you're not willing to put in the effort. So if a CPET didn't show any changes, obviously it would be because the patient hasn't given the effort. In Norway, an...

My Letter to Fiona Godlee Earlier today, I e-mailed the following letter to Fiona Godlee, the editor-in-chief at The BMJ and editorial director of BMJ. I cc’d the Health Research Authority, the CFS/ME Research Collaborative, NICE, Carol Monaghan, etc. The subject line: BMJ’s failure to...

- Between us, we have very many decades of clinical and research experience in trying to help people with Chronic Fatigue Syndrome (CFS), also called Myalgic Encephalomyelitis (ME). Ah, here comes the Schrödinger logic again. PACE is at the same time both about CFS, also called ME - and...

An update on the ongoing ME debate in the local newspaper Stavanger Aftenblad after several articles about the off label Rituximab treatment of ME in the region. ME patient Nina E. Steinkopf started with a letter to the editor called: Er Dagfinn Øgreid en grådig, kynisk lege som skader...

Aaaaaand the winner is *drumroll* :balloons::balloons::balloons:UNREST:balloons::balloons::balloons: :trophy@:trophy@:trophy@:trophy@:trophy@:trophy@:trophy@ 2017-18 Independent Lens Film (Updated)

The ME Association has written a summary of the paper. Direct link to summary.

Miriam E. Tucker: CFS takes down doctors, too Registration is required to access the article. Tells story of Gary Solomon, Mark Vink and anonymous Dr. X and Dr. Y - all MDs who developed ME. Asked what he would like other physicians to know about ME/CFS, Vink responded "...that this is a...