What matters though in a biomarker is, can it discriminate between patients with ME and other diseases that causes brain inflammation?
Re: It’s hard to imagine that that grant application won’t get funded Right. Now we’re jinxed. Thanks a lot. Health care research funding...
That’s an interesting perspective @arewenearlythereyet , thank you for sharing your side of the story. i know some men with ME who have been...
I hate it when folks, researchers and physicians, do not understand cause and pathology of the disease and want to push exercise and...
Scientists, publish your studies so we can hear from you first hand! Or better, please come and discuss your finding with us!
So sorry @andypants :(
@DokaGirl these are all neurological signs that points towards cerebellum issues. I womder why these doctors you have seen do not clue in to scan...
Ackkkkkk. Not buying a book on pacing. Will make a donation for research instead.
Talking causes much aggravation of my symptoms and can throw me in PEM, at least some kind of PEM. So talking is perceived as an effort. Moreover,...
I don’t think the health minister has any idea of how dire the situaton is (medical, socio-economic, emotional) for so many of us, and how...
I am sorry to burden you further @Alvin. It waas not my intention. I just want things to get moving. i want things to be happening in our country,...
Fair enough. However in our patient community, there will be some who actually want to and can do something. They may not know how, but wanting to...
But Alvin, I see you posting here often. It means that you have the cognitive capacity to think and write even much reduced. That is valuable....
Fixer upper, if you don’t like the results, you can change the data? Ooops... did I just say that? :jawdrop:
Sending my best wishes, @Hell..hath..no..fury... I hope you can lay down very soon and that your partner is well taken care of.
any updates from our Norwegian members about when the study will be published, and then the Cyclophosphamide one would be due too? Thanks. (I...
I would suggest we gather volunteers and form committees. So we could have -health ministry -human right committee -CMA (Canadian Medical...
i have a few comments to make, in random order. 1. I may be repeating myself or others who made the comment, but let’s turn to history. Other...
@Jonathan Edwards :nerd: that would be your ball park (or cricket field)
Because validation is a very good thing, and having objective measure of disability matters a lot in disability insurance. i totally understand...
Separate names with a comma.
