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I'm confused about what you are saying, can you elaborate?

I agree, if we don't try because we fear failure then we can't succeed because we gave up before even starting the journey. As Thomas Edison once said "I have not failed. I've just found 10,000 ways that won't work." Thats fine if one learns from failures and can try something else to work...

I use Naproxen when needed over the others because it lasts 8-10 hours and its available without a prescription and its quite cost effective. It has no effect on ME that i have been able to discern even when taken 3x a day for weeks (when my jaw was hurting like a mofo).

This is very interesting. I would love to be tested from it since my MRI showed multiple abnormalities. But i wonder at what point MRI could have effects on the human body, X-rays use radiation that can increase rick of cancer and other side effects, traditionally MRI has been considered benign...

Fool me once shame on you, fool me twice shame on me A scientist's academic reputation influences how trusted they are so if they blow it they should not be considered credible in the future. A scientist should have to have enough of a good reputation to get funding at all. If funding bodies...

If i had 350,000 in income i would be jumping for joy. And once the PEM from that activity hits i would have a helper making sure i am taken care of. Realistically though if anyone had that kind of income they would be loaded even after the taxes. If it were me i would make some donations to OMF...

This is why they create the DSM, they group symptoms together that they think are separate diseases, call it X, Y, Z and voila you have "science" Human nature does not change every 5 years or so yet "diseases" come and go and are redefined. Emotional trauma is emotional trauma, making up...

AI is not the panacea most hope it will be. Its a computer that is designed to compare A to B and spit out an answer. Its only as good as the programmer who designed it and has no common sense or intelligence. That said i know many doctors who have no sense either but that doesn't make a...

I get the feeling this is a "consensus" theory, they took every theory they could find and combined them to come up with a grand theory I am very much reminded of this Simpsons clip

Indeed, i hope one or more become verified and most importantly don't turn out to not be diagnostic. This second part is the hardest, things work much better in a lab then in the real world and if something is later shown to be associated with another disease as well it can be a huge PR blow but...

Very nice. I imagine @JenB and MEAction had to jump through a lot of hoops to get this approved so congratulations to all!

The thread title sounded ominous, so i'm glad its a positive goal :)

Again i don't argue against we could do with a good diagnostic test, but we really need a good, proofed diagnostic test.

I will not argue that having a disease thats diagnosed by exclusion will lead to misdiagnosis because it will which is what i hate about conclusion by exclusion. But we do not know whether or not those other patients met the CCC. That said i don't think this is the test that is going to weed out...

This has been theorized for many years, the vagus nerve cutting reducing risk has been known for quite a while. Alpha synuclein traveling to the brain from the gut has also been known for a while.

@Hip I get that your enthusiastic about this but this is not a smart thing to play with especially when something like the Canadian Consensus Criteria work quite well. Not to mention Dr Leonard Jason's high specificity questionnaires which i would love to see verified since he claims they work...

I don't have these answers, the amount of K2 in what parts of which animals is not well studied and probably is variable (or may not be at all). We do have some clues, as we know grass fed and grass finished leads to higher K2, liver i believe is higher in K2, milk/butter made from animals that...

I filled it out too, i gave simple answers that get to the crux of the situation objectively. If its a malicious intent my answers won't help a PACEr but if its for good then my answers get to the heart of the matter.

[Patient] has social anxiety hence you want to avoid future situations so your brain tells you your tired as a way to avoid them. The fact it happens in other situations that involve physical activity means you need a lifetime of Freudian "therapy" Or it just might mean [Patient] has hysteria...

I couldn't resist