Do we have confirmation that this interpretation of voting rights is correct?
I am sorry to see Alem’s family having to deal with this as well as seeing him so very ill as a result of his efforts on behalf of people with ME....
Did not someone say that one was a 19 year old patient? Cannot remember where I read this.
I’m whistling in the dark a bit here, but is there not a process that can be applied for if a decision making committee ignores the evidence...
Great work @Graham. Am pleased to see they are being tweeted. ETA: I ended that with a smiley face which disappeared. Just imagine a grin.
https://www.nice.org.uk/guidance/indevelopment/gid-ng10091 Trying to look for an announcement from Nice re above. As far as I can see, the last...
Statement from INVEST in ME Addendum II - 03 November 2018 The latest news from NICE is that they have now decided to open two new positions in...
MEAssociation has posted @Brian Hughes’s blog. I think I read that they weren’t planning to be on the website this weekend for energy reasons so...
After a pretty rough 2 weeks, with the Cochrane issue, the Nice guideline development group formation, the Guardian podcast, it has been wonderful...
He discusses the Guardian podcast. It’s bang up to date.
I am hugely grateful for your interest and commitment to the ME community but I am struggling to accept the “behind the scenes” agenda. I truly...
I think we need to be writing individually to Nice and our MPs. My DH stepped up and has just posted our letter to Sir Andrew. Then we need to...
Stay strong @ladycatlover. My walking limit is about the same as yours and same age as you, and it’s a nightmare. I was distraught yesterday after...
Thanks @It’s M.E. Linda
Can anyone fill me in with the names of the 4 speakers to the Back Benchers Committee? As well as Carol and Nicky Morgan, please can someone tell...
Just too pem’ed to post currently partly as a result of seeing grandchildren last week. Truly felt so, so sad at having to say ‘no’ to...
Why has Nice revealed the names of the members of the GDG in different sized groups? How does CS know there are more to come? Curious.
Sorry @rvallee It is ‘edited to add.’ It would be more efficient to post a photo but that’s beyond me currently.
https://www.facebook.com/meassociation/ I have found some comments by Dr Shepherd. I do find the order in which posts come up is erratic so I...
Should not the ME charities be involved with this? We are going to be scuppered with this gdg. Why are they releasing them piecemeal? @Afme @MEA...
Separate names with a comma.
