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  1. Sly Saint

    Dr Gabrielle Murphy - UK BPS ME/CFS doctor

    Royal Free Fatigue service: https://www.royalfree.nhs.uk/services/services-a-z/fatigue-service/chronic-fatigue-syndrome-treatment/ eta: good job they didn't take this approach with the original 'Royal Free outbreak' .... they clearly haven't learned from their own history.
  2. Sly Saint

    Dr Gabrielle Murphy - UK BPS ME/CFS doctor

    Taken from a blog originally from 2011 but the comments go on to 2018; other comments: in the interest of being equipoise, a more positive comment (although Dr Murphy knew that the patient was a medical student): full blog here...
  3. Sly Saint

    ME/CFS services in the United Kingdom

    Child and Adolescent Mental Health Service (CAMHS) Access Policy Barnet Enfield and Haringey Mental Health trust Somatisation Disorders, Hypochondriasis, Dissociative Disorders, Pain Syndromes & Chronic Fatigue Syndromes: CAMHS will work in close liaison with Paediatric services. Refer to...
  4. Sly Saint

    ME/CFS services in the United Kingdom

    Mental Health Service Directory 2017 City and Hackney CCG: Books on prescription: https://search3.openobjects.com/mediamanager/hackney/fsd/files/c_and_h_mh_service_directory_2017_002_002_.pdf
  5. Sly Saint

    Patients given unsafe medical implants

    They'd probably just have them as the control group........ ie standard medical care.
  6. Sly Saint

    PPS new name for MUS - Integrated Care for People with Persistent Physical Symptoms 02/10/2018

    "Acronyms of ignorance" https://www.s4me.info/threads/government-and-insurance-companies-establishing-the-bps-model.2319/page-3#post-123982
  7. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Written question 196648: Kelvin Hopkins 28-11-2018 Q Asked by Kelvin Hopkins (Luton North) [N] Asked on: 28 November 2018 Department of Health and Social Care 196648 To ask the Secretary of State for Health and Social Care, what discussions his Department has had with NICE on acceptance of the...
  8. Sly Saint

    New Website on Severe ME

    welcome @Naomi10 you've already 'been posted' here: https://www.s4me.info/posts/125106/ but lovely to have you here in person.
  9. Sly Saint

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    I like the way she says 'MUS term a bit outdated'! What would she prefer? MUPS, PPS, BDS.........or any of the other bogus names? Not even slightly concerned about the inclusion of the additional 'mental health disorders'(?) speaks volumes.
  10. Sly Saint

    Children's pain: we can make it better? - featuring J. Bond-Kendall

    https://www.csp.org.uk/frontline/article/childrens-pain-we-can-make-it-better links to FITNET another of NICE guidelines committee members.
  11. Sly Saint

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    Your document is only visible to members, so I thought I'd 'highlight' a few for the 'general public'. (note when I do this(?) it is usually rhetorical/sarcastic:D)
  12. Sly Saint

    The prevalence and treatment of health anxiety in Chronic Fatigue Syndrome (CFS) - Jo Daniels 2018

    Presentation (PDF Available) · July 2018 with 37 Reads DOI: 10.13140/RG.2.2.29883.52009 British Association of Behavioural and Cognitive Psychotherapy, DOI:10.13140/RG.2.2.29883.52009...
  13. Sly Saint

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    is this in breach of the NICE regulations for members of the Committee? Senior Lecturer in Clinical Psychology/Clinical Psychologist University of Bath. Interests: Behavioural Medicine, evidence-based practice. https://www.researchgate.net/profile/Jo_Daniels2
  14. Sly Saint

    A general thread on the PACE trial!

    I know that people have already reported that some of the links to the documentation for the PACE trial no longer work. Just going thro the Sharpe/Wessely/Mike Godwin twitter thread here on S4ME and picked up that the link Wessely gives for the PACE trial is now a dead link. The current link is...
  15. Sly Saint

    2018: Discussion on the NICE procedure: what to expect next?

    Not sure if this has been posted before: Systematic Evidence Review to support the development of the NICE clinical guideline for CFS/ME in adults and children from 2005 (I think it was known as the York report) https://www.nice.org.uk/guidance/cg53/evidence/full-guideline-appendix-1-pdf-196524110
  16. Sly Saint

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    See also this thread: https://www.s4me.info/threads/pps-new-name-for-mus-integrated-care-for-people-with-persistent-physical-symptoms-02-10-2018.6732/ for ppl with "Persistant Physical symptoms" So MUS or LTPHC (Long-term Physical Health conditions). Although it would appear that now in IAPT...
  17. Sly Saint

    Pulse: "Revealed: How patients referred to mental health services end up back with their GP"

    Meanwhile back in the 'real world' "'Mental health crisis is placing extra pressure on the police' A SENIOR Cumbrian police officer has welcomed a report which recognises how overstretched the police service is by the mental health crisis in the UK."...
  18. Sly Saint

    Campaign week from the Norwegian ME Association to increase knowledge

    could someone maybe tweet this for this: https://www.s4me.info/threads/nov-29th-youngheartsday-for-kidswithme.6922/ be nice to show some international solidarity.
  19. Sly Saint

    ME/CFS services in the United Kingdom

    Thread on IAPT here: https://www.s4me.info/threads/the-iapt-pathway-for-people-with-long-term-physical-health-conditions-and-mus-full-implementation-guidance.6948/
  20. Sly Saint

    2018: Discussion on the NICE procedure: what to expect next?

    Yes.........but then along came the PACE trial..........
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