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  1. Kalliope

    News from Scandinavia

    I'm sure it is custom in many countries to give commercials a break during holidays and to leave the space for non profit organisations to share their messages. At Dec. 26th on the commercial channel TV2, a short ad will come from the Norwegian ME Association about ME. This will probably reach...
  2. Kalliope

    #MEAction: NIH Update: Collins Will Meet With #MEAction Representatives!

    ah, I see what you mean. The twitter campaign was launched earlier, but don't know if it has its own thread here. Feel free to start one :-)
  3. Kalliope

    #MEAction: NIH Update: Collins Will Meet With #MEAction Representatives!

    It is a follow up letter after their meeting with NIH, so thought this thread was best suited.
  4. Kalliope

    Improving images used to depict ME/CFS

    Could it be possible to lobby directly towards Getty, Shutterstock etc? News articles about ME are increasing internationally, and chances are good that if they tag pictures "ME", "CFS" news agencies will use them and buy licenses for the pictures. Perhaps a request with a very short...
  5. Kalliope

    News from Scandinavia

    NHI - Norwegian Health Information - is a company providing an independent digital medical reference site for general practitioners. According to their website they are Scandinavias largest supplier of health information to health professionals. The information is written by doctors. For years...
  6. Kalliope

    News from Scandinavia

    The Swedish government ordered two public assessment on ME this year. The first was published two days ago and is discussed in this thread: https://www.s4me.info/threads/swedish-agency-for-health-technology-assessment-and-assessment-of-social-services-sbu-with-report-on-me.7277/ The second...
  7. Kalliope

    Study from Denmark linking infections to mental disorders

    CNN: Infections in kids tied to subsequent mental illness risk in new study (dec. 6th) Amy Proal seems excited:
  8. Kalliope

    Study from Denmark linking infections to mental disorders

    Might be of interest. It is getting a lot of attention in Denmark and Norway. The study is from Aarhus, a strong epicentre for psychosomatics and functional disorders, which makes me a bit wary whether there might be some politics involved here. Jama Psychiatry: A Nationwide study in Denmark of...
  9. Kalliope

    Concerns about Cochrane

    Peter Gøtzsche is crowdfunding to cover legal costs and to support a new Institute for Scientific Freedom GoFundME: Scientific freedom Peter R. Breggin MD and Ginger Breggin, International Center for the Study of Patient-Oriented Psychiatry write: “Peter Gøtzsche MD is a hero of science and...
  10. Kalliope

    Swedish agency for health technology assessment and assessment of social services (SBU) with report on ME

    Short article with summary of main points from the journal to the Swedish Medical Association. Läkartidningen: SBU: Underlag saknas för behandling vi ME/CFS Swedish Medical Association: SBU: Evidence is lacking for treatments of ME/CFS
  11. Kalliope

    News from Scandinavia

    Good article about ME in a Norwegian women's magazine. We learn the story to Sol, who got ME after mononucleosis when she was 17 years old. She is still sick now, 4 years later. Paediatrician and neurologist Kristian Sommerfelt has long experience with ME and provides updated and relevant...
  12. Kalliope

    Swedish agency for health technology assessment and assessment of social services (SBU) with report on ME

    I contacted SBU asking if there will be a summary in English, which they confirmed :)
  13. Kalliope

    Swedish agency for health technology assessment and assessment of social services (SBU) with report on ME

    Swedish Agency for Health Technology Assessment and Assessment of Social Services (SBU) published today a report on ME. They are an independent national authority, tasked by the government and evaluates methods used by medical and social services. SBU: Myalgisk encefalomyelit och kroniskt...
  14. Kalliope

    News from Scandinavia

    During the recent years the Norwegian Parliament has allocated earmarked grants for the RituxME study. Now that the study has finished, the government decided to remove this annual post of 2 million NOK (231 457 USD/ 183 801 GBP). Patients have mobilised and protested and during Saturday's...
  15. Kalliope

    #MEAction: NIH Update: Collins Will Meet With #MEAction Representatives!

    Saw it in a tweet from MEAction, email will probably be sent soon
  16. Kalliope

    #MEAction: NIH Update: Collins Will Meet With #MEAction Representatives!

    #MEAction: #MEAction met with NIH director - Here's what happened #MEAction appreciates that Dr. Collins, Dr. Koroshetz, Dr. Nath, and NIH program staff took the time to meet with us. We felt that there were some good discussions on opportunities to incrementally advance the field that will be...
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