So what do DWP work coaches do if it does not include any form of symptom management, given the aim is getting people back to work? And no matter how clear the message may be, I very much doubt the DWP gives a fig about that. pwME will still be getting coerced into doing what they cannot and...
This is extremely valid ...
My wife, I think, experiences relatively mild PEM typically, though still debilitating. But when her pacing gets messed up, either by circumstance or occasional over-enthusiasm, it hits her a lot harder. Although never as severe as some describe here. But it's true...
I've assumed this is very carefully worded. The government could not call for the abolition of CBT/GET, because it is presumably down to what NICE recommends, and has to be left down to NICE. But given the NICE guideline is being overhauled, I imagine this motion is doing what it can much more...
It can also be potentially very embarrassing, or even risky! I seem to have developed a habit of occasionally typing anagrams, and it is quite a world of discovery. "This" for example. Others I cannot recall at the moment. (Sorry, off topic).
My wife's ME started after a thyroid operation. Fairly recently we felt her ME might be complicated by her thyroid not being adequately managed, even though everything was supposedly in normal range. Having upped her T4 medication she has definitely improved somewhat, though the ME is still a...
Reading all this, I would like to be reassured that @Action for M.E. is not being exploited (possibly unconsciously, possibly not) by BPS proponents, as a low resistance conduit through which to promote BPS thinking on ME/CFS. Just get an uncomfortable feeling about some of this.
If that is the main problem, then so far as I am concerned that is absolutely not a problem, and I suspect I speak for pretty much everyone (on our side anyway!). You are a major (seriously major) part of why things are changing. Yes progress is slow, slower than any sane person might have...
I agree with you seeing as the paragraph begins "Such cases may be referred to as ... or ...". Implying the same thing but just different terminologies.
I hadn't twigged the exact meaning of this, so googled it. Yep, now I get the it! In this example I guess it's a very chummy variation on "holding hands" in a circle :D. So very appropriate.
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