I haven’t followed the thread except to read Simon’s post but just to add that some of the recoveries might be better described as remissions if people later relapse.
I thought I would highlight that this post caused me to lose a few hours sleep. I read it not long before I was planning to go to bed, but it took me 2 or 3 extra hours to try to get to sleep and when I slept, it was not as good a quality sleep as I normally get, and I woke up at around my...
Free full text:
https://bmjpaedsopen.bmj.com/content/3/1/e000390
EBV-requisitioning physicians’ guess on fatigue state 6 months after acute EBV infection
Tarjei Tørre Asprusten1,
Maria Pedersen2,
Eva Skovlund3,4,
Vegard Bruun Wyller1,5
Abstract
We assessed referring medical practitioner’s...
It’s one of the reasons I think it’s important for the ME/CFS community to try to raise money for biomedical research: there is likely to continue to be a number of cheap studies like these. And particularly when there are large gaps in the biomedical science, there will be psychologists...
I’ve just finished the full book. I don’t necessarily disagree with most of what has been said already but still think this book could be useful in getting through to some doctors especially as she is one of their own. Best done alongside drier, more fact-based material.
I’m not sure it counts as intimidation but this review by a reviewer for the BMJ was unorthodox and inappropriate:
https://jcoynester.wordpress.com/2017/04/26/should-the-bmj-silence-authors-who-were-abused-by-a-reviewer/
I believe that the conference was postponed for 3-6 months mainly because Sonya Choudhury was taking a period off work to deal with a medical issue. Not the end of the world to have a little delay, I think.
He is presumably referring to the Prins et al. 2001 trial. It is also a Dutch word that translates as prince.
That trial is sometimes referred to as a trial of Fukuda et al, but actually weirdly some of the patients didn't satisfy the Fukuda et al criteria!
This represents a 22% acceptance rate, which is better than the average as far as I'm aware.
One could complain that the figures include the ring-fenced funding which might be misleading but one would have expected a lot of applications to go in for that.
Unfortunately, it suggests that a lack...
These are presumably the 2 others studies:
MR/K020269/1 Research Grant 01/10/2013 31/03/2016 Investigating the epidemiology of CFS/ME in children using the ALSPAC cohort. University of Bristol http://gtr.ukri.org/projects?ref=MR%2FK020269%2F1 Dr Esther Crawley £296
MR/M02363X/1 Research Grant...
Though I agree in principle with what you’re saying, I’m not sure hard divisions between fields of research for an illness are common. If the Medical Research Council fund it, it will generally be considered medical research.
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