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Jessica Bavinton's Vitality 360 liked that tweet - bleurgh!

He seems to ignore the fact that covid-19 is more infectuous than normal flu, as well as more deadly. That combination is a reason for concern even if there's also still a lot of uncertainty.

So much depends on the specifics - it's easy for things like this to sound good in principle, but end up being shaped by the preferences of those who know how to play the system (which tends not to be patients). If Action for ME are playing a leading role, that leaves me more concerned too.

Do you know if there will be opportunities to engage? Is it particularly worth watching it live rather than watching videos/hearing summaries later?

That's not much to judge on! There were some really annoying and thoughtless things in there, but there were bits of critical engagement as well. I wouldn't be too sweeping in judgement=.

Thanks for everything Mike. Sorry to hear this has got in the way. You certainly shouldn't feel like you'd be letting anyone down by not making this big change to your plans when you didn't think it was the best idea. All your work has been amazing, and is very gratefully appreciated.

A new one from the same person, even worse than before. He gives the impression of being totally caught within his own ill-informed prejudices. https://www.varden.no/meninger/me-aktivisme/ google translate...

Every time I open a FINE document... I was just getting annoyed at this bit: "you cannot relapse because you now know how to combat it. You understand what happened to your body during CFS and why a controlled graduated activity plan and regular night-only sleep pattern was necessary. You...

https://www.thisismoney.co.uk/wires/reuters/article-8079459/COVID-19-epidemic-pushed-concerted-approach-WHO.html

Some of their briefings sound like they're now aiming to have infections peak during the summer, when the NHS is under less strain, and would like to have it 'move through the population' before we get to autumn. I'm a bit surprised they seem to already be shifting to that plan rather than...

I guess it's possible that they googled your name and saw this thread? That could explain the delay in telling you they didn't want to share that information about their work.

It's slightly unfortunate timing (even ignoring Fool's day) but lets hope corona pandemic doesn't mean doctors are all busy elsewhere. Thanks to everyone working to improve the way things are in the UK.

Thanks Michiel. That's annoying - the way they class trials as blinded or unblinded is a vital part of the paper so failing to let others check their assessment really makes it difficult to have an opinion on their findings. Given the way some people are talking about the importance of this...

That press release doesn't seem particularly careful. So there's an association... seemingly that's now enough to prove causation? Those with cancer who believe they're more likely to survive are more likely to survive. That association had been presented as evidence that positive beliefs about...

I want to read them... I don't want to read them.

We knew about the planned Larun review on causes to ME... it features some of the usual bullshit artists: https://www.fhi.no/prosjekter/systematisk-litteratursok-med-sortering-om-arsaker-til-kronisk-utmattelsess/ Some more details (only a brief summary in English)...

People were commenting earlier about sensing an attitude of misogyny in Edward Shorter's work, but maybe he just wants to be abused by women! Maybe. Who knows, but some of his recent blogs seem a bit revealing...

Their recommended outcomes (table 4) are all self-report questionnaires, aside from healthcare resource use. So the aim is to get FND patients to fill in questionnaires a bit more positively and bother doctors less?

via google translate: That Helland again? Weren't Vogt's Recovery Norge group praising themselves for the great talk they gave to Norway's disability welfare (sorry- I've forgotten the name) department?

1. I often see people commenting on this on forums, social media but have no specific recommendation. 2: While he can seem embarrassed at being the default choice and often point to others who have done a lot of valuable work, I think Tom Kindlon is the best example of a patient who has been...