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Ricky Gervais gives M.E. another mention in his second series of Afterlife on Netflix (contains lots of swearing):

I wonder how the body would tell you that there was something physically wrong with it that needed dealing with now? Doesn't seem very efficient to use the same signalling system (symptoms) for 2 different messages. So the BPS crew are basically saying "we know how to distinguish between the...

This is bullshit. By studiously avoiding CBT and the medical profession generally I have been able to have all the discouraging and grumpy thoughts I want over the last 6 years and have improved substantially (I could claim "recovery" in the BPS sense, but unfortunately my grumpy pedantry...

Listening to the video, she seems sincere and to have suffered a horrible health situation. But that doesn't excuse setting herself up as an authority not only on M.E. but also depression (which she can cure in 6 months) and other health conditions, and peddling deluded health quackery at a...

That's great news, and only €100 for 50 minutes on the phone and a cure. Or only €16 for an email. Unfortunately I won't be able to reclaim it from my health insurance company, because they don't recognise alternative practitioners, and she doesn't seem to have any other qualification. Oh well...

Fatigued, tired, exhausted etc aren't very exact, but I use "exhausted" and "knackered" to my wife to describe what kind of day it is (nobody else asks / knows, so it's not like I have to choose my words carefully with others). I don't think we should beat ourselves up for not being exact, or...

Youtube is awash with "experts" in various alternative fields demonstrating their powers and posting sessions with their clients. About 6 years ago when I first became ill I watched an EFT practitioner conducting a session with a client on youtube. I was invited to tap myself on the head and...

I thought Pervasive Refusal Syndrome had been redefined to mean not doing what Esther Crawley says?

Thank you, I'm going to use that :)

That's interesting. What word was it exactly - "Mundschutz"? If so I can see why that would be misleading, because it contains "Schutz" - protection, which is making a claim.

They'll ignore DT until there's a chance of him costing them money or scuppering their plans. Why bother engaging before that? Put the letters in the file, keep an eye on it, carry on with plan A.

It's a product, they want to churn it out and make money. That's their focus, and where they see their time and energy best spent. As long as politicians and businesses can get their hands on a "study" that meets the evidential standard of "barely plausible", that's the science box checked...

The new goal is now when the number of new infections per day is only a couple of hundred, rather than around 2000 as it is now. Each new goal does create the impression that when it's reached we can all get back to normal, which is unfortunate.

Everyone finds it hard to rest up during the onset of an illness. This is not specific to ME sufferers. You get ill, you carry on. If it doesn't go away soon, rest a bit until you feel better (a few weeks at most), then get up and carry on. It's what everyone does, and it works for most...

In Germany, although the government and the Robert Koch Institute wanted the data collected centrally, they have now agreed to decentralized collection, simply because they want a lot of people to use it. Not that we have an app yet, but they're working on it.

I am still working. It's just about all I'm doing. My secondary benefits are no sport, music, socialising ... Surely if I was enjoying the sickness role too much I'd be doing things the other way round?

Excellent.

It's had a positive effect for me. My usual Monday before coronavirus: sofa until 11:00, drive 40 minutes, walk a long way from the carpark and up two flights of stairs, teach 90 minutes, eat, teach 90 minutes, lock office door and lie down for 15 minutes, teach 90 minutes, walk to car, drive...

Agreed. The illness fluctuates, so does the amount of energy available each day, often without rhyme or reason. So trying to impose a routine is pointless, it takes no account of varying / fluctuating symptoms and level of functionality.

I heard on the news tonight that all states will be introducing a duty to wear masks at different times over the next week or so, my state will introduce it next Monday. I think the psychosocial difference between the states concerns regional cultural attitudes towards punctuality, urgency, and...