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For the sake of completeness -- full article published here: Geraghty, Keith & Jason, Leonard & Sunnquist, Madison & Blease, C. & Tuller, David & Adeniji, Charles. (2019). The 'Cognitive Behavioural Model' of Chronic Fatigue Syndrome: Critique of a Flawed Model. Journal of Health Psychology. 6...

Very well said, both Jo and rvallee. Edit: Another comment has now been published. :whistle:

Thank you, Caroline. I missed that. (Which year do we have?) Apologies for any confusion. Yes, see the commentary @Caroline Struthers referenced: And: https://www.jla.nihr.ac.uk/about-the-james-lind-alliance/history.htm

I won't be able to undertake any of the things I proposed in my post above but I read your letter again, @Graham and think it's a good letter that you should send. Some suggestions: - Perhaps add something like "I would be happy if you could have a look at some of the most industrious...

I assume you are aware that Iain Chalmers is both a co-founder of Cochrane and was the coordinator of the James Lind Initiative which according to Wikipedia, "includes the James Lind Library and the Jams Lind Alliance"? Edited to change Chalmers function to the past tense, see...

I missed @Caroline Struthers' comment from 2018 and Larun's response to that protocol. Seems that a link hasn't been posted yet? https://www.cochranelibrary.com/cdsr/doi/10.1002/14651858.CD011040.pub2/read-comments L. Larun: Also, someone reminded me of the remarkable fact that the...

Peter White (ed.) 2005: Biopsychosocial Medicine, An integrated approach to understanding illness. Oxford University Press https://global.oup.com/academic/product/biopsychosocial-medicine-9780198530343?cc=de&lang=en&# Links to this conference and book have been posted on different threads...

https://twitter.com/trishgreenhalgh/status/1293148324107821058 https://twitter.com/SithElephant/status/1293151894282657792 https://twitter.com/trishgreenhalgh/status/1293153400843112449

That was quick: Trial By Error: And Now–No Surprise–CBT for Post-Covid Fatigue by David Tuller https://www.virology.ws/2020/08/08/trial-by-error-and-now-no-surprise-cbt-for-post-covid-fatigue/

Maybe the Tweeter confused something?(*) Recent article on Medium by Windgassen: How to Use Psychology for Better Bowel Function Evidence-based techniques to reduce discomfort and anxiety from IBS and other intestinal distress...

Heather Hogan: The Soft Butch That Couldn't (Or: I Got COVID-19 in March and Never Got Better) | Autostraddle https://www.autostraddle.com/the-soft-butch-that-couldnt-or-i-got-covid-19-in-march-and-never-got-better/ https://twitter.com/theheatherhogan/status/1291028415072567297...

Webinar: RoB 2 Domain 3: Bias due to missing outcome data Presented by Higgins and Sterne. https://training.cochrane.org/rob-2-domain-3-bias-due-missing-outcome-data

From The Guardian: The chairman of the guidance committee, Nick Kosky, said that, while patients expected a clear diagnosis and effective treatment, the complexity of the condition means GPs and specialists can find it very “challenging” to manage. The consultant psychiatrist at Dorset...

And there it is: https://www.s4me.info/threads/genetic-risk-factors-of-me-cfs-a-critical-review-joshua-j-dibble-simon-j-mcgrath-chris-p-ponting-2020.16173/

It's amazing what you've achieved already with voluntary work only, in particular the splendid website. Again, thanks to all involved. All my suggestions are for the time when your team will have the resources to consider them. Another one of that category, for the website: In the "About Us"...

Couldn't find a thread on the concept of fatigue in chronic illness and assessing fatigue in general, so leave this here: Larson R. D. (2013). Psychometric properties of the modified fatigue impact scale. International journal of MS care, 15(1), 15–20. https://doi.org/10.7224/1537-2073.2012-019...

Anyhow, this might be part of the problem: (from Manjaly Z et al, Pathophysiological and cognitive mechanisms of fatigue in multiple sclerosis -- the paper @Woolie looked at ).

Thank you @Woolie for digging into one of the most recent papers. I don't know whether I will be able to write a bit more why I updated the list but I'm afraid that there are more reasons to be annoyed. As mentioned above, I only skimmed the papers, so not able to word clearly or to...

Thank you for the update, @Andy . Some suggestions: It would be extremely helpful for me to have a (very) short text on the DecodeME website that could be copied and used as template for an e-mail asking friends and family to circulate the call for getting involved in the study / declaring...

The UK Sepsis Trust: Why do I still feel breathless even though my oxygen levels are normal? (Youtube video) https://www.youtube.com/watch?v=lZ0cC7IZBr0&feature=youtu.be Youtube transcript: