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  1. shak8

    Reading words incorrectly

    Just read for PEM, 'post errection malaise' or was it errectional.
  2. shak8

    USA - Mayo clinic

    Mayo clinic website advice is useless, watered down pablum. The reading level is for age 7. I use the CDC or the NIH websites for general medical info.
  3. shak8

    CBT for ME that is accepted by the community.

    You can access the short list of cognitive distortions (upon which CBT is based) on Wikipedia and memorize them. That way, you don't need someone spoon-feeding you them. You apply it immediately. Over and done with. Teach them in high school. And there are other things to plague one's mind...
  4. shak8

    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    So this is medical propaganda, NICE. Or rather, not nice. Relief of part of someone's chronic pain is the most important intervention a doc can make. If a trial of various drugs, one by one or in combination are found to be effective, well then, the doctor has done their job. Sure, Purdue...
  5. shak8

    Ear muffs for better rest

    Are the Molderx Spark Plugs you use the kind with the 3 flares? Are they really superior to the average foam ear plug?
  6. shak8

    New Video from the Bateman Center: What is ME/CFS for doctors

  7. shak8

    Blog: Your silence is killing M.E. by Anil van der Zee

    Your English is much better than mine, Anil. Impressive and moving post. Important. legato e expresivo.
  8. shak8

    Comforting factors that influence the severity of fatigue and other somatic symptoms from the perspective of CFS, 2020, Overgaauw

    Poor copy editing of the manuscript or note taking. The fibromyalgia-threat detection concept is not from 2016. The book referenced is Paul Gilbert's Human Nature and Suffering, published in 1996, not 2016. Poor quality research paper, indeed. Maybe author is missing some soothing attention to...
  9. shak8

    Pacing - what do you do/how would you describe it?

    Yeah, I knew I was falling into the water on my cognitive comment. I worry about that I have the beginnings of dementia, can't spell past the first letter of a work, wonder how the most basic of things works as I am trying to do something very routine/minor, etc. Oh well. Lie down and give the...
  10. shak8

    Pacing - what do you do/how would you describe it?

    Sounds coming from outside, especially voices, from apartment neighbors, from traffic (I have to have open windows due to heat) all seem to imply 'threat' and have to be almost actively interpreted by my brain. It impairs me cognitively and physically. During PEM, sound is even more...
  11. shak8

    Perceptions of Person-Centred Care Amongst Individuals with Chronic Conditions who Consult Complementary Medicine Practitioners - Foley et al 2020

    With fibromyalgia (and maybe approaching the hem of ME), the only docs who had knowledge and empathy about my disease were the specialists treating it at the time, rheumatologists. I don't know how neurologists do these days, as it falls into their category. But all the 'care' after diagnosis...
  12. shak8

    Making and managing medical anomalies: Exploring the classification of ‘medically unexplained symptoms’, 2020, Rasmussen

    I used to have the diagnosis of fibromyalgia for which the rheum at the time (1996) said merely: use heat, heat, heat. Still good advice. But now the ICD-10 code for fibromyalgia is termed Widespread Chronic Pain, which tells you less, much less. Another tiny compartment of the junk drawer. At...
  13. shak8

    Resources for help getting food during quarantine and safe handling of food

    I'm on my 3rd replanting of basil plants. I have two pots that look healthy. I may have given them too much California direct sunlight or sprayed them too frequently with my homemade insecticide soap, but they were being eaten or destroyed (probably by me) by something. I think some salad...
  14. shak8

    The biology of coronavirus COVID-19 - including research and treatments

    But Daniel Griffin, MD. the expert from Columbia U in NYC who has treated over1000 covid patients, said in last week's virology podcast (see Twiv, via microbe tv) that he has witnessed an apparent second infection. So, case isn't closed (no pun intended) on this question.
  15. shak8

    Shingles vaccines, chickenpox, Shingrix

    Shingrix is expensive (new, more effective than Zostavax) and because of its effectiveness (maybe because of the adjuvant?-- which is the chemical that prods your immune system into action) side effects of the vaccine can be strong: sore arm, muscle aches, fever, etc. This means the immune...
  16. shak8

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    Here's something for the future: https://www.nytimes.com/2020/07/11/science/windows-street-noise.html?action=click&module=Well&pgtype=Homepage&section=Science Noise cancelling for your window
  17. shak8

    Noise cancelling headphones! Oh Joy! (and other ways to block sound)

    I use a very old Bose (no techie gizmos) noise cancelling headphones. They help as I have tinnitus plus noise sensitivity. Recently I experienced a great improvement though by reading the directions on how to insert foam ear plugs (roll into a cylinder and then insert deeply into the ear canal...
  18. shak8

    New Swine Flu with pandemic potential, July 2020

    Good summary: https://www.sciencemag.org/news/202...demic-potential-increasingly-found-pigs-china
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