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:jawdrop: What a very scientific way to deal with this! First I was on the fence about his story with long covid, and tried to see him as someone misguided by his own experience and projecting it on others, like so many people tend to do, but this attitude with the blocking is hard to explain...

Abstract COVID‐19 leads to severe respiratory problems, but also to long‐COVID syndrome associated primarily with cognitive dysfunction and fatigue. Long‐COVID syndrome symptoms, especially brain fog, are similar to those experienced by patients undertaking or following chemotherapy for cancer...

I like it how type A personality is a predisposing factor, with too high expectations of their own recovery time. But also another predisposing factor is the type who often visits the doctor, thinks a lot about their symptoms and has apparently too low expectations of their recovery. I always...

Here we go again with the "cost-effectiveness". Edit: sometimes they sound like a startup company.

N=1 experience. Part of the reason why I find online dating hard is that it is full of men who are into alternative medicine, psychobabble (or conspiracy theories or esotericism or horoscopes or...). These are absolute dealbreakers for me because I'm just so much the opposite. Yet when I share...

The name Gaber sounded familiar and indeed, here he is: https://www.s4me.info/threads/review-assessment-and-management-of-post%E2%80%90covid-fatigue-2021-gaber.19130/ In this piece he was supportive of BPS and CBT. In the one posted by Andy he mentions the possibility of developing maladaptive...

I remember when I had this major knee surgery at the age of around 20, that a few days afterwards I told one of the nurses that my knee hurt in certain positions (I used crutches to walk, so no real pressure was applied). And she told me it must be psychological. And that was just a few days...

What baffles me is that covid in itself is indeed something new and what we know about its sequelae is still relatively limited, yet these people (it's not particularly Garner I'm talking about here) already seem to know post-covid syndrome is psychosomatic, before a decent amount of research...

I took NAC too for about two months for ME, my doses were based on what Nancy Klimas recommended in one of her videos. I felt nothing, so I stopped.

In Hungary the priority groups are not public, so there is no way to know when you are supposed to get the vaccine. A doctor leaked the diseases in risk group 1 though, so we know that people with diabetes, heart, pulmonary diseases, cancer etc are included, basically people most threatened by...

Mental health related long covid clinic set up in Hungary If you haven't had enough of reading BS on long covid yet: now there is a long covid clinic in Hungary specifically for people dealing with mental health issues afterwards (it is part of the National Institute of Psychiatry and...

Abstract The COVID‐19 pandemic has focused health systems on supporting patients affected by this virus. Meanwhile in the community, many other contained patients could only use self‐care strategies, especially in countries that have set up a long and strict containment such as France. The...

Higher health-care seeking behaviour, higher degree of illness worry, etc as psychological characteristics of adult patients- well, that is my sister, who goes to the doctor with every little thing and is super-worried whenever she gets any kind of minor infection and is also always ill with...

This is something I really would like to think. But I'm also kind of worried because in the last few weeks I've seen some long haulers saying things like "it also depends on if you want to get better - because some people just don't", "the mindset matters a lot", "you have to get back to being...

The American Academy of Pediatrics posted a summary of a "virtual town hall meeting" on long covid on the website. (Sorry if this was already mentioned, in that case I missed it.) This is the article: https://www.aappublications.org/news/2021/03/23/townhall03-18-21 Peter Rowe was among the...

By Litsa Dremousis "As is true for many disabled Americans, my health-care costs resemble pipe bombs that keep blowing up my bank account, leaving it a pile of smoldering ash. As such, I can’t afford a house. Like many disabled Americans, I live in a multiunit dwelling where the majority of my...

Yes. From wikipedia: " In the United States, about half of all five-year-old children and about 90% of adults have evidence of previous infection.[17] Infants become susceptible to EBV as soon as maternal antibody protection disappears. Many children become infected with EBV, and these...

Thought I'd share: I just saw someone in a long covid group whose doctor prescribed acyclovir for her (after several months of symptoms).

1st or 2nd dose? I've been following quite closely how pwME reacted to the vaccines (there is a Facebook group for this) and the general impression seems to be that the first Pfizer doesn't really cause a lot of side effects, the AZ vaccine tends to cause more but it's vice versa with the...

Living with long COVID, 1 year on A personal account of long covid (and improvement after a low histamine diet). No mention of ME/CFS (apart from "chronic fatigue") but this is how she described some of her symptoms: https://www.medicalnewstoday.com/articles/living-with-long-covid-1-year-on