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Dr. Nisreen Alwan's comment to the study

The Danish public broadcaster has an article about a Danish study on Long Covid published in the Lancet. It's a big study with 10 500 Danes that have tested positive for Covid-19. It concludes that few get severe long terms effects. But it seems they define severe long terms effects by whether...

I think information has to come from sources that healthcare care personell trust. ME advocates here are not such a source, and we'd probably just be blamed for being alarmist and CAUSING Long Covid. Thankfully there are good information sources as Long Covid Physio's website and the recent...

On the website of the survey Massachussetts ME/CFS & FM is no longer listed as partner, but OMF has been added as partner.

Just adding a few more videos from The ME Action Network which I think has not yet been shared in the thread. Medical Education with dr. Nina Muirhead and midwife Hayley Valentine-Howard "Dr Nina Muirhead talks about her new module that aims to provide up-to-date education to GPs. Hayley...

These look really good!!

Sundhedspolitisk tidsskrift: Blixt truer Heunicke med mistillidsvotum i sagen om sygdommen ME google translation: Blixt threatens Heunicke with a vote of no confidence in the case of the disease ME Quote: The Danish Parliament's decision from 2019 (V82) to change doctors' diagnosis and...

Medical Express Long COVID affecting more than half of patients six months on This is the study the article is about. Way above my head.. Journal of proteome research: Systemic Pertubations in Amine and Kynurenine Metabolism Associated with Acute SARS-CoV-2 Infection and Inflammatory Cytokine...

A promotion article today in the Norwegian public broadcaster about this resort. It sounds just as bad as I had feared. NRK: Ingerid fekk korona. Då ho var tilbake i klasserommet, hugsa ho ikkje namnet på elevane google translation: Ingerid had corona. When she was back in the classroom, she...

Thank you!! I've seen it many times and always wondered what it was about.

Does anyone know what the hashtag #NEISvoid stands for? It seems to be an umbrella term for the conditions the survey is directed towards. Also, has anyone had a go yet at the survey? How was it?

The book is now published and in the shops! Jørgen Jelstad has written a blog post about the book release: De Bortgjemte: Nå er ME-boka "Våre liv, våre stemmer" ute google translation: The ME book "Our lives, our voices" is now out It received a great review in the newspaper Vårt Land...

Walter J. Koroshetz on twitter: #NINDS joins #CDC 's message on #MEAwarenessDay. There is a tremendous need for a greater research effort and improved clinical care for those suffering from #MyalgicEncephalomyelitis/Chronic Fatigue Syndrome. https://cdc.gov/me-cfs/resources/awarenessday.html…;

It'sME(Jaime) on Twitter: Here is my huge announcement! My new study, Symptom Cluster Characterization in Complex Chronic Disease is now enrolling. This survey-based study will probe more deeply into #MEcfs, #longCOVID, #POTS, #hEDS & #MCAS symptoms. https://meaction.net/epi (1/5) Symptoms...

Partners: Patient-Led Research Collaborative, #MEAction, Columbia University Mailman School of Public Health, The Jackson Laboratory, Massachussetts ME/CFS & FM, The University of Edinburgh (MRC) ABOUT The Chronic Illness Survey Adventure (Symptom Cluster Characterization in Complex Chronic...

You're just in time for the international PEM day. Well done everyone who contributed to the international awareness day!

Cornell Center for Enervating NeuroImmune Disease: Dr. Maureen Hanson provides a Pecha Kucha for ME/CFS "A pecha kucha ("chit-chat" in Japanese) consists of 20 images that are displayed for 20 seconds each. The image change automatically as the presenter i speaking. Thus, the speaker has 400...

Greeting from Wolfgang Mückstein - Minister of Health in Austria Google translation: On May 12., I would like to draw attention to ME / CFS, the many affected people and the necessary expansion of medical and social care. ME / CFS is a neurological disorder and complex multisystem disease...

Canadian Institutes of Health Research tweets: Today is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) International Awareness Day. #MECFS is a chronic, complex, multi-system disease that affects approx. 600,000 individuals in Canada. Learn more : https://bit.ly/3tEppBi...

Wow, what a great job @Wyva Thanks for the summary and for doing the interview!