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Depressing findings, but I wonder what those figures would be for BPS researchers looking at ME/CFS, FND, MUS, Long Covid, etc. [added - what is the impact of using subjective self reporting in surveys of research malpractice and scientific fraud on the results. Would objective outcome measures...

Thank you for this link. So the government is not suppressing these figures, it is just they are not being widely reported. It looks like in the UK now more vaccinated people in the over 50s are dying from the Delta variant than the unvaccinated. The figure I cited above for some vaccines only...

Just came across this figure, but it was quoted without any source: “A reminder: the Pfizer and Astra Zeneca vaccines are only 65% effective against the Delta Variant” The Delta variant is now the dominant strain in the UK.

The only figures I have seen were just very small numbers in one small area; something like four out of nine deaths in one hospital (absolute figures not a proportion) were people who had been fully vaccinated (two jabs more than two weeks before getting Covid). Also these were not official...

Moved posts Have found this article suggesting vaccination may not reduce the risk of Long Covid, but as always it is not clear how much reliance to place on a newspaper article, especially one with a potentially misleading headline, see No evidence vaccine reduces risk of Long Covid, says...

In the UK there are people who have had both injections and still died from Covid even after the two week period following the second jab, though this is obviously much much less likely than with people who haven’t had the vaccine. It seems that the figures for this are not being published. The...

Yes, what @Trish said.

I would be happy to to sign such a letter, though I struggle to collate information and ideas so don’t think I could currently draft or edit such a letter. For me there are two main issues: Firstly the issue of child protection, and that undertaking an intervention with children that instructs...

Can’t be certain that this would work. I had thought that Prof Crawley’s SMILE study would be the reductio ad absurdum of this approach, and lead people to question this whole use of subjective outcomes in unblinded trials relating to GET/CBT, but low and behold seeming rational intelligent...

Is August 2021 ‘late 2021’?

Is it worth considering what the Bristol/Bath group’s position on recovery following intervention in the Bath clinic? I may be misremembering but hasn’t Prof Crawley previously claimed a 95% success rate in treating paediatric ME/CFS? But in this paper she says “around a third do not recover...

Here are the references for the Physiotherapy and Occupational Therapy FND consensus papers mentioned by Perez: Nielsen G, Stone J, Matthews A, et al. Physiotherapy for functional motor disorders: a consensus recommendation. J Neurol Neurosurg Psychiatry 2015;86:1113–9. (link...

Do we know if the Bristol academics and Bath NHS clinicians who co-wrote this paper with LP trainers/staff/Phil Parker have every attended or participated in any LP course/sessions?

Also as mentioned elsewhere in relation to the reproducibility of research, because of commercial secrecy it is impossible for any independent verification to ever take place. But over and above this, it means that any academic, doctor or clinician recommending LP has no objective information or...

I now have a pdf of the full article, but assume that sharing it here would be a breach of copyright. Hope to read it tomorrow, but anyone wanting to know more message me.

Note, I see that Dr David Perez has written an editorial comment for this article, see https://jnnp.bmj.com/content/early/2021/06/30/jnnp-2021-327213.full but the full text of this is also behind the paywall. As are the references for the ‘convergent’ consensus recommendations for...

As an undergraduate in experimental psychology and as a research student in acquired language disorders, then in my SLT training and in nearly twenty years of being a practicing Speech & Language Therapist, largely working with acquired neurological conditions, I had not come across any...

Such a shame that there don’t seem to be many/any prospective studies. Certainly in the UK now is the time for such studies as the delta variant seems to have been given free reign in relation to children and young adults.

@MeSci, I think it is useful to share Lyme’s disease info here, because of potential misdiagnosis of Lyme’s as ME and ME as Lyme’s, because of the overlap in symptoms raising the possibility of similar or related disease processes, because it is not impossible for some individuals to have both...

Thank you, @Parsnip, for putting in all the hard work and under taking the emotional challenge to share this account. It will take me a couple of days to read it all, but this is such an important topic. The LP is worryingly successful at PR, and it is the con treatment that most people hear...