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There's a copy of an older version on archive.org. Comparing the two, the following entries have been deleted: and these have been added:

This just came up in my news feed: https://www.dailymail.co.uk/health/article-9775925/Can-long-Covid-cured-monthly-dose-vaccine.html Dr David Strain (AfME's new medical adviser) is planning a trial to determine if repeated vaccination alleviates the symptoms of long COVID.

The Linbury Trust is one of the trusts established by Lord Sainsbury, and they've had an interest in funding ME research for a very long time. As far back as 1998 they produced a short booklet ("A Research Portfolio on Chronic Fatigue") which contained contributions from many of their grantees...

The suggestion of a unified comms & PR strategy seems a very sound one to me. The ME patient community is constantly being blindsided, while the very slick strategy with the SMC as its lynchpin has effectively shaped public & medical opinion and obviously discouraged clinicians and researchers...

As it happens, I was just reading another story from another of the many victims of this reprehensible process. The mendacity and malevolence of Parker and his LP quacktitioners are simply obscene. Encouraging participants to lie to themselves, lie to others, and to disconnect from...

From my brief skim, the study seems to be to have been well-conducted, although there is no clinical detail; nothing as to how the patients were selected & diagnosed, so who knows whether these patients meet any diagnostic criteria or whether they are indeed representative of fibromyalgia...

Definitely - and not just Libby. My local council's library service also offers access - remotely, just with a library number - to Borrowbox (e-books), PressReader (newspapers & other publications) as well as Infoweb Newsbank (an archive of tens of millions of news articles dating back decades).

Abstract Aims: Post-exertional malaise (PEM) is poorly understood in Gulf War Illness (GWI). Exercise challenges have emerged as stimuli to study PEM; however, little attention has been paid to unique cardiorespiratory and perceptual responses during exercise. This study tested whether select...

A minor historical point, but if they say it was first used in Fukuda, then they're wrong. This is from Komaroff's contribution to the Jenkins-Mowbray Post Viral Fatigue Syndrome book (1991); there may be even earlier references still...

A little off-topic, but given that there is topical interest in Newton's opinions re. ME, here are two pages from "Postural Tachycardia Syndrome: A Concise and Practical Guide to Management and Associated Conditions" (published in 2021), where she contributed the chapter about the "associated...

Attached. Not quite as bad as, say, HADS, but some questions are problematic in the context of ME, particularly those that involve the "I am less motivated" construction, e.g. q21 ("I am less motivated to do anything that requires thinking"). I'm certainly motivated to; my body just won't allow...

Here you go, @Trish. I don't feel at all well enough today to offer a thorough critique, but a few random thoughts: This seems more like an attempt to influence the NICE process rather than being a useful & original contribution to the literature. They seem particularly concerned that the NICE...

bioRxiv preprint: link, PDF Summary SARS-CoV-2 has infected over 160 million and caused more than 3 million deaths to date. Most individuals (>80%) have mild symptoms and recover in the outpatient setting, but detailed studies of immune responses have focused primarily on moderate to severe...

Yes, important to realise that this is not just a random video, but is part of Health Education England's e-learning for NHS clinicians. I asked someone with access to this to find out if there were any other Long COVID or ME/CFS related courses; as shown by the screenshots below, there are...

This programme appears to have been put together back in 2020 and attracted some news coverage at the time (link, link, link). Service evaluation (no control group!): https://www.frontiersin.org/articles/10.3389/fpubh.2021.628333/full

There is an interesting paper in the BMJ (link, main PDF) entitled "Risk of clinical sequelae after the acute phase of SARS-CoV-2 infection: retrospective cohort study" using large coded health records data to estimate the excess risk of developing various conditions in the aftermath of a...

The chapter in question is from "Postural Tachycardia Syndrome: A Concise and Practical Guide to Management and Associated Conditions" (link). I've just skimmed it; here's a sampling: Unfortunately, while there's acknowledgement that PEM can occur in response to exercise, there's no real...

The researchers say that they use a child-centered questionnaire, RCADS in addition to HADS; it appears that this suffers from the same well-known problems as HADS. The RCADS47 can be found here and the scoring can be found here. Almost all pwME are going to answer "often" or "always" to...

https://www.acpjournals.org/do/10.5555/comment1557/abs/ https://www.acpjournals.org/do/10.5555/comment1538/abs/ https://www.acpjournals.org/do/10.5555/comment1529/abs/

Wasn't hopeful that this guidance would change - especially as I'd heard that NHS pain-management clinics had adopted the new approach - but disappointing nonetheless. NICE have set up a false dichotomy with the primary vs. secondary pain concepts; there is little evidence that the conditions...