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  1. Kalliope

    ScienceNorway: What is going on in the bodies of ME/CFS patients?

    The Norwegian news site about research, forskning.no, recently had a thorough article about current research into ME. @Midnattsol shared the article on the Scandinavia thread here. The article has now been translated into English and published at ScienceNorway. ScienceNorway What is going on...
  2. Kalliope

    Long Covid epidemiology (prevalence, incidence, recovery rates)

    Moved post Twitter thread from prof. Kunst with updated estimates of Long Covid cases and new ME/CFS cases
  3. Kalliope

    News from Scandinavia

    The newspaper Dagsavisen is following up this story. The health political spokesperson for the socialist party (SV), Marian Hussein, has started to get engaged in ME and supports the patients. She has asked the Minister of Health and Care Services to answer how ME patients should be ensured a...
  4. Kalliope

    Post-COVID-19 syndrome and humoral response association after one year in vaccinated and unvaccinated people, Peghin et al, 2022

    Thank you Trish. That's a good point. I saw that prof. Kunst has written a new comment to the study. With the first comment I got the impression that one was _more_ likely to develop Long Covid as vaccinated, which was quite surprising.
  5. Kalliope

    Post-COVID-19 syndrome and humoral response association after one year in vaccinated and unvaccinated people, Peghin et al, 2022

    Spotted this on twitter via prof. Kunst who comments: IMPORTANT FINDING: A key argument for lifting restrictions has been that vaccination substantially reduces chances to get #LongCovid. In a new study, vaccinated people were NOT significantly less likely than unvaccinated to get Long Covid...
  6. Kalliope

    Post-COVID-19 syndrome and humoral response association after one year in vaccinated and unvaccinated people, Peghin et al, 2022

    Clinical Microbiology and infection Post-COVID-19 syndrome and humoral response association after one year in vaccinated and unvaccinated patients by Maddalena Peghin et al Abstract Objectives To describe the impact of vaccination and the role of humoral responses on post-coronavirus disease...
  7. Kalliope

    Glossy tiles in bathroom

    oh, that sounds like a lovely room, indeed! Thanks for adding to the thread and I'm glad you're happy with the matt tiles, it makes me feel better about the choice that's been done :-)
  8. Kalliope

    BPS attempts at psychologizing Long Covid

    Well, at least they're not holding anything back.. Ekspertar meiner korona varer lenger om du er redd google translation: Experts believe corona lasts longer if you're afraid - The cause is complex, but worries and stress seem to both prolong and worsen the symptoms, says Wyller. Signe...
  9. Kalliope

    News from Scandinavia

    A heartbreaking article about severe ME sufferer Aurora's fight with her municipality to get the help she and her doctors says she needs. Dagsavisen: Mens hun venter på helsehjelp, ligger Aurora (24) i mørket google translation: While she waits for health care, Aurora (24) lies in the dark...
  10. Kalliope

    LP-fortellinger - Norwegian website sharing information and experiences about Lightning Process - now available in English

    I've seen an LP coach on Twitter talking about the importance of motivation in order to make changes, and compared LP with going on a diet. You need to be motivated and be willing to do the work in order to expect results. Of course what is implied here is also that those who don't achieve...
  11. Kalliope

    Physicians with long Covid confront a medical establishment eager to classify their illness as psychological (2022) Tuller

    Not quite. There's a summary here: https://house.fandom.com/wiki/Tired_Man ETA: To be fair, when clicking on the link to "Chronic Fatigue Syndrome" it says: On the series, Molnar thinks he might have CFS, but House effectively treats the condition with candy mints. Thus proving that Molnar...
  12. Kalliope

    News from Spain

    El País has an article about a couple where the husband is a Spanish musician and the wife is a Norwegian ME sufferer. The google translation is pretty good and the article explains well the challenges ME brought into their lives. El País Ingrid y Jorge, la gran historia de amor del pop español...
  13. Kalliope

    Endothelial dysfunction and altered endothelial biomarkers in patients with post-COVID-19 syndrome and ME/CFS, Haffke, Scheibenbogen et al, 2022

    Spotted on twitter via prof. Kunst who comments: In a new #LongCovid study, one in three patients showed endothelial dysfunction (i.e., diminished ability to widen blood vessels when needed). Also of note, 15 of the 30 patients qualified for #MECFS for which this impairment is frequently observed.
  14. Kalliope

    Endothelial dysfunction and altered endothelial biomarkers in patients with post-COVID-19 syndrome and ME/CFS, Haffke, Scheibenbogen et al, 2022

    Transl Med Endothelial dysfunction and altered endothelial biomarkers in patients with post-COVID-19 syndrome and chronic fatigue syndrome (ME/CFS) Milan Haffke et al Abstract Background: Fatigue, exertion intolerance and post-exertional malaise are among the most frequent symptoms of...
  15. Kalliope

    LP-fortellinger - Norwegian website sharing information and experiences about Lightning Process - now available in English

    You can read most of the stories in English translation here. More will be added as they're translated. I've heard so many LP stories over the years, but this was still upsetting to read. Many thanks to those who have shared their experience with this method...
  16. Kalliope

    Long Covid in the media and social media 2022

    ah, at least he agrees GET is not appropriate for everyone
  17. Kalliope

    Long Covid in the media and social media 2022

    Response from Putrino Lab: “Deconditioning” does not satisfactorily explain any #LongCovid symptoms. Not one. To assert that it does ignores consensus LC science in favor of a reductionist mindset. To assert that it does on a large, “trusted” platform like @IndependentSage places patients in...
  18. Kalliope

    Long Covid in the media and social media 2022

    Don't know if this from March 16th has been shared already? ABC News AUDIO: Doctors report long COVID and MECFS similarities - The impact of the long term effects of COVID-19 are becoming better understood. It's estimated that up to 30 per cent of people who get infected with COVID show...
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