I wonder how many GPs will just decline to engage with the issue. For example my GP practice refuses to engage in any way with PIP applications,...
For me there was no gap at all between the ending of the trigger infection(s) and the onset of my ME. My initial onset was associated with an...
Unfortunately Prof Crawley, judging on the basis of her press interviews on ME, is strongly committed to the belief that behavioural changes will...
The ‘cured’ evangelical former patient seems to be a feature of ME/CFS and it is difficult given the high level of misdiagnosis (circa 40%) to...
Thank you @lunarainbows , a very useful account.
7) various Thyroid conditions 8) HIV Does there also need to be a list of things not commonly tested for that should be considered 1)...
Why is it believed that over testing results in harmful false beliefs? Is there any evidence for this? Obviously any medical assessment has...
Also did the researchers have a control group of health care workers who did not have Covid, given the demands of working in health care through...
I am not motivated to read the article but if depression is assessed via questionnaires can we be sure it reliably distinguishes between...
@Wyva, I hope this is not too long, and unfortunately the more I tried to keep my English clear and simple the worse it got. I won’t mind if you...
Here in the UK the official Covid death toll was significantly lower than the excess deaths figures, but I have not seen recent figures to know if...
[tangent alert] I was unaware of even the possibility of orthostatic issues in ME for the first twenty years I had the condition even though I...
We really need data on how many people diagnosed with an MUS turn out to have a treatable medical condition, and what the costs, including...
Thank you @Andy
Thinking back to when I was still working in the NHS, it was part of my job within my clinical specialism to work with/support professional and...
If I remember correctly the Society’s turn over is not large enough for it to need to submit itemised accounts to the Charities Commission and...
Thank you for all raising this/these issue(s). I am not up to fully following the thread fully at present. However, given the impact ME has had...
@Wyva, do you have a time scale? I want to contribute, but have had a busy week, visit to the optician’s and a new electric metre fitted today, so...
Great to see this donation surge in these last few days, fingers crossed it will continue. @Sean, this last link doesn’t seem to work for me....
The authors do hint that there are the right and the wrong sort of online groups, though I guess our and their understanding of what fits into...
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