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  1. NelliePledge

    United Kingdom: ME Association news

    I think it’s the sending to surgeries that hasn’t been completed
  2. NelliePledge

    Covid-19 vaccination experiences

    Although to be fair in my experience vaccinations for flu and Covid were done in well ventilated places
  3. NelliePledge

    Covid-19 vaccination experiences

    https://www.bbc.co.uk/news/health-62183714 Now announced all over 50s in uk to be eligible for Covid booster
  4. NelliePledge

    What psychological interventions are effective for the management of (PPS)? A systematic review and meta-analysis, 2022, Swainston et al

    First paragraph of background quotes “PPS” as 20% of gp consultations and 52% of specialist referrals @dave30th bete noir of Bermingham also quoted
  5. NelliePledge

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I assumed not and I think the ‘researchers’ will assume that nobody will bother to check on them so won’t hold back from coming up with their own interpretations of,or excuses why they weren’t able to meet, the requirements.
  6. NelliePledge

    Qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with [CFS], 2021, Crawley et al

    Can see it coming a mile off oh the reviewers don’t want to be named or their review published because of those people with ME and their friends “maliciously” pointing out “completely inadvertent” :whistle: omissions and errors
  7. NelliePledge

    Lightning Process study in Norway - Given Ethics Approval February 2022

    And will the NEM be auditing compliance with their requirements?
  8. NelliePledge

    The Chronic Elephant blog by hellytheelephant

    Love the Tour de France one Helly. :thumbup:
  9. NelliePledge

    The Future Challenges: Replenish-ME

    What world do these people live in where naming a questionnaire “acceptance” of a debilitating symptom like pain or chronic fatigue seems appropriate :banghead:
  10. NelliePledge

    Long Covid in the media and social media 2022

    Thank you @shak8 maybe the researchers don’t realise that with @dave30th connection to Virology blog website their discussions might reach a wider audience. Perhaps they wouldn’t have been flippant if they realised.
  11. NelliePledge

    Ensuring the Voice of the Very Severely Affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patient Is Heard in Research—A Model, 2022,Baxter

    Makes recommendations about how it is possible to engage people with very severe ME. This will be very useful for people involved in patient participation in research to educate researchers. It’s a shame they had to go to the effort of doing research paper in order to get the message out...
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