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  1. Sly Saint

    United Kingdom - Thérèse Coffey appointed Secretary of State for Health and Social Care, Sept 2022

    it was touch and go at one point that Coffey (being also Deputy PM) might stand in as PM:nailbiting: eta: is there a 'bring back javid for health minister' campaign yet?
  2. Sly Saint

    Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe ME/CFS 2022, Hiremath

    so NICE recommended treatment for 'moderate' patients at that time would have been CBT/GET.
  3. Sly Saint

    UK House of Lords/ House of Commons - relevant people and questions

    Vicky Foxcroft Shadow Minister (Work and Pensions) To ask the Secretary of State for Health and Social Care, if her Department will take steps to collect data on the number of cases of myalgic encephalomyelitis that have been triggered by a Covid-19 infection. Tweet Share Hansard...
  4. Sly Saint

    Factors Influencing the Prognosis of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2022 Ghali et al

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a long-term debilitating multisystem condition with poor prognosis. Studies that examined predictors of ME/CFS outcomes yielded contradictory results. We aimed to explore epidemiological and clinical prognostic factors of...
  5. Sly Saint

    Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe ME/CFS 2022, Hiremath

    Key Features of a Multi-Disciplinary Hospital-Based Rehabilitation Program for Children and Adolescents with Moderate to Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome ME/CFS other authors include Anna Gregorowski (BACME) Hiremath, S.; Doukrou, M.; Flannery, H.; Carey, C...
  6. Sly Saint

    Psychosomatic symptoms related to exacerbation of fatigue in patients with medically unexplained symptoms, 2022, Hashimoto et al.

    this is one description of MUS. IE a group of conditions; meaning diagnosed illnesses eg ibs,cfs etc. the other interpretation however is more in line with the name; medically unexplained symptoms; namely the actual symptoms, which are primarily fatigue and pain. the latter allows them to...
  7. Sly Saint

    Long Covid in the media and social media 2022

    A mass disabling event: The effects of long COVID don’t stop at the individual https://www.dailykos.com/stories/2022/10/19/2129692/-A-mass-disabling-event-The-effects-of-long-COVID-don-t-stop-at-the-individual?utm_campaign=recent
  8. Sly Saint

    USA: The RECOVER Initiative - Long Covid research

    Keynote Presentation: Advancing Toward Recovery from Post-Acute Sequelae of SARS-CoV-2 Infection (PASC): The NIH RECOVER Initiative with Live Q&A OCT 19, 2022 12:00 PM PDT Walter Koroshetz, MD Director of the National Institute of Neurological Disorders and Stroke (NINDS), National Institutes...
  9. Sly Saint

    Bing ME/CFS information

    Moved post I thought the Google pop up was bad but have just used Bing...... under treatment " Therapy Cognitive behaviour therapy:A professional counsellor helps you improve your daily activities and lifestyle. Graded exercise program:Increasing the exercise intensity and time gradually...
  10. Sly Saint

    UK Government announces £800m boost to support innovation and improve patient safety

    https://www.pmlive.com/pharma_news/uk_government_announces_800m_boost_to_support_innovation_and_improve_patient_safety_1456936 eta: see also https://www.nihr.ac.uk/news/new-multimillion-investment-to-help-turn-research-discoveries-into-treatments-for-patients/31653 (includes list of NIHR...
  11. Sly Saint

    Post COVID-19 condition: critical need for a clear definition and detailed pathophysiology 2022

    Tom J. Kerkhoff, Braeden T. Charlton, Brent Appelman, Michele van Vugt, Letter to the Editor https://onlinelibrary.wiley.com/doi/10.1002/jcsm.13108
  12. Sly Saint

    Series of Guardian articles on Long Covid, October 2022

    ‘They can’t ignore us any more’: five women on long Covid and medical misogyny https://www.theguardian.com/society/2022/oct/18/long-covid-women-symptoms-medical-misogyny
  13. Sly Saint

    Orthostatic Intolerance in Long-Haul COVID after SARS-CoV-2: A Case-Control Comparison with Post-EBV and Insidious-Onset ME/CFS Patients 2022 Visser

    Abstract Background: As complaints of long-haul COVID patients are similar to those of ME/CFS patients and as orthostatic intolerance (OI) plays an important role in the COVID infection symptomatology, we compared 14 long-haul COVID patients with 14 ME/CFS patients with a post-viral Ebstein-Barr...
  14. Sly Saint

    ME/CFS services in the United Kingdom

    job ad University college London (UCLH) Highly Specialist Occupational Therapist https://www.nurses.co.uk/jobs/1760897/highly-specialist-occupational-therapist-in-london-greater-london-university-college-hospital-london-nhs-trust/ highly specialist? try getting the name right...
  15. Sly Saint

    Long Covid in the media and social media 2022

    A long-hidden disease is pulled from the shadows by its cousin, long COVID https://www.sfchronicle.com/health/article/chronic-fatigue-COVID-disease-17512173.php
  16. Sly Saint

    HRA (Health Research Authority) & Bristol University's report on E. Crawley's CFS/ME Studies over registration to the Research Ethics Committee (2019)

    Trial By Error: Did the Dog Eat Professor Crawley’s Seven Missing Corrections? https://www.virology.ws/2022/10/16/trial-by-error-did-the-dog-eat-professor-crawleys-seven-missing-corrections/
  17. Sly Saint

    United Kingdom - Thérèse Coffey appointed Secretary of State for Health and Social Care, Sept 2022

    Thérèse Coffey wants people to be able to get antibiotics from the chemist without asking a doctor https://www.dailymail.co.uk/news/article-11318711/Th-r-se-Coffeys-nuts-plan-antibiotic-prescription-without-GP-okay-makes-drugs-effective.html eta: better idea; use these (or similar) FebriDx®: A...
  18. Sly Saint

    Series of Guardian articles on Long Covid, October 2022

    another article in guardian on long covid https://www.theguardian.com/society/2022/oct/15/long-covid-ravi-veriah-jacques-hope-identity with this in the middle;
  19. Sly Saint

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and fibromyalgia are indistinguishable by their cerebrospinal fluid proteomes 2022, Schutzer et al

    Steven E Schutzer, Tao Liu, Chia-Feng Tsai, Vladislav A Petyuk, Athena Schepmoes, Yi-Ting Wang, Karl Weitz, Jonas Bergquist, Richard Smith, Benjamin Natelson preprint Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and fibromyalgia have overlapping neurologic symptoms...
  20. Sly Saint

    Long Covid in the media and social media 2022

    Long covid may set you back a decade in exercise gains Scientists say that exercise intolerance should now be considered a new symptom of long covid https://www.washingtonpost.com/wellness/2022/10/13/long-covid-exercise-symptoms/ eta: thread on study...
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