Search results

  1. NelliePledge

    John Campbell - videos on medical issues

    Except the guy that video isn’t exactly a reliable source.
  2. NelliePledge

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    I think a one pager is absolutely the best way to go as an initial communication to try to engage a broad audience of GPs/medical professionals. People are so busy/bombarded by new information. more detailed information should be provided as reference for those who need more when they...
  3. NelliePledge

    Rates of Prolonged Grief Disorder: Considering relationship to the person who died and cause of death, 2023, Thieleman et al

    If people were more supported at the time they lose the person they are close to there would be fewer people who struggle to cope for years. Grieving a death is normal and people shouldn’t be expected to suppress those feelings after a couple of weeks. Equally as we all know part of the...
  4. NelliePledge

    United Kingdom: ME Association news

    True but I think that’s true for most of us whether we realise it at the time or not
  5. NelliePledge

    UK House of Lords/ House of Commons - relevant people and questions

    Not checked but I’m guessing there’s no NICE guidelines on POTS so they’re making the reference to ME guidelines to be able to give a substantive looking reply. Also it may be that the MP has also written in about a constituent and the person drafting the PQ reply is also dealing with that.
  6. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Yes if possible to engage with prospective candidates before the election will be important. eta. Obviously this doesn’t apply to the Lords so hopefully Baroness Finlay’s association would continue.
  7. NelliePledge

    Poll - Have You Ever Believed In Psychosomatic Illness?

    I don’t think it really registered with me I definitely had heard of psychosomatic but didn’t think about it in any depth. To be perfectly honest people being malingerers was more on the radar. I didn’t believe that this applied to anything other than a small minority but I did have a couple...
  8. NelliePledge

    Proof of concept of prehabilitation: a combination of education and behavioural change, to promote physical activity in people with FM 2023 McVeigh

    Yeah symptom fluctuation should be an outcome And The actual perceived improvement being half that expected by the patients Is definitely telling them useful information that may be new to these researchers - Need to understand negative impact, does any perceived benefit outweigh the impact...
  9. NelliePledge

    Recognition, explanation, action, learning: Teaching and delivery of a consultation model for persistent physical symptoms, 2023, Fryer et al

    Energy conservation…. attention & amplification so as soon as you say I have to try to manage my energy carefully, I have to monitor my symptoms you are pressing alarm buttons traps to those who have been through this “training” and have had their thinking adjusted away from believing you
  10. NelliePledge

    Trial Report REFUEL-MS - CBT/GET Digital Intervention MS-Fatigue

    It’s bizarre using that random upper and lower case like some stereotype of the way an anonymous threatening message would be written
Back
Top Bottom