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One of the tables shows lower diagnosis in areas of deprivation ie as well as lower diagnosis for minority groups it is also based on class as well. Which I can certainly say does not surprise me having moved from an area that had a service commissioned for ME/CFS to one where there is no...

Well summarised my experience also. Sedation is not sleep

Yep. Transparency and accountability

May be well intentioned but anyone dipping into the pockets of sick people and their families should set out who they are and aims clearly and in sufficient detail to be transparent than two lines on twitx and a PayPal account

Wot Sid said

Just tried The uk wording is based on the NHS website …

SSRIs tricyclics gabapentin/pregabalin. Throw it at the wall see if it sticks medicine n my opinion.

After earlier concerns about the coroner it is reassuring to hear Sarah Boothby sounding more positive about the process. And good that a date has finally been set.

Oh no hope you can find someone sensible. Meanwhile if you have to see her again maybe the physiosforME one page helpsheet would register with her.

And they also shared on Facebook

They should have programmes that do long term follow up

Wow @Wonko im so glad you got access to online food shopping.

:emoji_fire:

Succinct and hopefully will influence many health professionals. an excellent example of how to get key points over in a communication product without needing to go into all the background.

Improved but clearly not recovered

Articles from the likes of Reuter and AP are syndicated so do often proliferate across the press & media

Well AFME and MEA did a decent job on the dragons den debacle so even if NICE don’t do much hopefully their efforts will produce some coverage

The nhs web update is in the draft implementation plan published in the autumn by DHSC. Update by end of March 2024 I think they said. At the time the draft plan came out many of us pointed out that 6 months to sort the small amount of web content was utterly ridiculous and could be sorted in a...

Agreed @TiredSam the situation of many in the ME community is very bad and that’s what we all focus on and we all do our best to highlight very severe in discussions advocacy responses etc Sadly the situation of others may be due to different harms but is also terrible.

:D