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Again with this. There is zero evidence that it has anything to do with psychological consequences, but the way it's framed it has to be falsified in order not to be considered true. This is not how science works! Cultural beliefs are not a basis of evidence for anything anymore than swords in...

Heh, yeah I watched it last night. Filmed in Calgary.

Could be worse, but there is the usual "multidisciplinary teams because mental health and behavioral", but they frame sleep issues as behavioral, which is absurd, and the poor mental health is clearly a result of the illness, so that without addressing the illness, addressing the mental health...

Those sure are real problems. They just have nothing to do with this problem. Except labour shortages, which are in large part this problem, but they don't see it. It's actually kind of funny that they mix in unrelated problems with the clear wink-and-nod that they are similar (LC is basically...

"Do you like me?": Yes Oh, yes! Not no Yass! Choose only one. You must choose one. QED.

They are not. Have never been. Hence the lack of citation. They're a product without a need, and here it's people interested in pushing the product who set the tone. Also with no citation, just a vibe from a long-held assertion without any basis. It comes from a lazy loop where no one cares...

Seems to rehash most of the usual tropes, this time focusing mostly on distraction, but with the same "fear-avoiding" and reconditioning from generic rehabilitation, based on nothing at all. As is pointed out, despite not being of much interest to clinicians, fatigue is the most disabling...

Comments on energy conservation treatments for MS-related fatigue and a new proposal https://www.sciencedirect.com/science/article/abs/pii/S0022510X24001758 Highlights We propose that fatigue in MS involves a sensory component reflecting the state of the immune system. The predetermined...

So far seeing more engagement than in past years from LC accounts, persons and associations.

This. A principle of scientific models (or theories) is that they have to be predictive, if not of all things, at least of one thing, and then very accurately. Models that can't predict accurately aren't very useful, while models that can't predict anything are functionally useless. They may...

I'm wondering if it'd be worth testing for this. I don't even know if it's worth doing, if it'd change anything. If I can even get it tested. If it's even a thing that they test around here. I'm leaning towards... no. I may get a reference to a new (from last year) clinic dedicated to chronic...

It is! Something in the song about it? Haven't listened to yet.

Especially when this has been one of the main methods of discrimination and attack against us. So has the constant recycling of the same or similar terms, but they've all run out of them. There is definitely some creativity with this latest batch, but we've heard it all already, and it's just a...

So they used the widest possible definition, and still got nothing. This is actually impressive. It's very hard to be this incompetent by accident, it takes decades of experience to achieve anything close to this. This is basically a broken clock that manages to never be right. And it won't...

That would be the case if it weren't for the huge number of cases that develop each year. Most of us who are ill for the long term eventually give up, but those who are ill for less than a year will be going through the usual rounds, sometimes seeing 10+ MDs in the process in a completely...

As is typical on social media, other than pwME and pwLC, most of the comments under those attribute LC to COVID vaccines. The continue cover-up of LC by medicine is fueling the biggest expansion of the antivaccine movement so far, and if it didn't exist before (thanks to The Lancet), it would...

I assume none of them really are complying, but 1/4 report that they do anyway. In some cases it may be somewhat close, but always missing the mark. It's not as if we can trust any of the information they publish. In fact, we literally can't trust anything they say without independent verification.

It's not a fair framing, though. In most cases, it's "won't diagnose". We've seen it plain stated so many times, "we don't like to diagnose people with this". I have seen far too many people saying their MD agreed that they meet the criteria, but they won't put the diagnosis down, usually with...

But on what basis is it determined that adherence is a good thing here? Other than beliefs and professional validity, i.e. it's not considered good when clients drop off therapy? Because when someone is extremely thirsty and they drink 3 glasses of water, you could say that they adhered to the...

I've seen worse, but a lot of the questions have ambiguous framing or simply rephrase other questions in a different way, and no way are those are all equal in value, so when they add up to a score, interpretation is arbitrary. I don't even understand how anyone thinks that this methodology...