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Effectively a MUS clinic

The one that really frustrates me is if I’m in a social situation in conversation with two or three other people and I’m in the middle of a sentence but something makes the brain to mouth connection drop out and the second part just evaporates. I find myself interrupting and talking over people...

Ah magic all we need to do is change the description from chronic to long-term and that will give the hope that will make everything so much better. Lightweight thinking.

I don’t understand why people keep announcing that viruses have long term effects as some kind of revelation.

It’s like there’s a loose connection yes Ezzie. Showing my vintage reminds me of Trying to start a car with a manual choke and you’re going through the steps of pulling out the choke turning the key and pumping the accelerator but it still won’t start.

Hard to say if you are on the chubby side

Posts discussing an event involving Paul Garner have been moved to https://www.s4me.info/threads/paul-garner-on-long-covid-and-me-cfs-bmj-articles-and-other-media.15629/page-108

Oh gosh yes instigate security measures like cardboard cups for the coffee so there’s no rattling noise.

https://www.s4me.info/threads/me-cfs-post-doc-post-at-medical-university-of-vienna.40819/ ME/CFS Research post at Medical University of Vienna

We have started a thread this is a series of videos with Dr Binita Kane

Have they ever set out what is supposed to be involved in this “standard medical care”. Because as most of us know in real life standard medical care is about £0.

That’s quite a common schedule for me. I usually wake around 11 go to the loo take my paracetamol etc and go back to lying in bed for about an hour until the paracetamol takes the edge off

Oh dear @JohnTheJack sorry you came up against that - what ignorance on behalf of the scheme designers.

I’d say it’s hard to separate out cognitive from physical. Interaction with other people in person especially outside your home involves both types of exertion. When I was working from home would it have been sitting up at my table on my laptop or concentrating on telephone meetings that was...

I can’t take ibuprofen at all due to being on anti hypertension medication (before being on the meds I would definitely use ibuprofen for any kind of pain but I didn’t have ME then. I do use paracetamol which reduces ME daily pain aching to a lower level than if I don’t take it.

You might think that but Cochrane couldn’t possibly comment. (Reference is to Francis Urqhart for those not au fait with 1990s BBC drama)

Definitely I’m worse if I get any kind of bug. To give my worst example in recent years Covid knocked me back for 3-4 weeks and then several more getting to some kind of usual level. I often can’t tell whether I’m having a PEM induced crash or I’ve got a bug. In the (10?) undiagnosed years it...

Maybe say over the counter painkillers as there are other prescription painkillers people use and supplements like CBD

Many thanks to @Karen Hargrave and the group at #ThereForME, now a signatory of the open letter to Cochrane.

Yes the McCrone et al PACE paper