Can I say that's really interesting Snowdrop without appearing insensitive? Of course I'm sorry to hear that you have OI now, particularly as it...
Hi Daisybell thanks for the reply yes I have certain fingers and toes which like to play up (shoes and gloves cannot be very close fitting),...
@Jonathan Edwards Don't worry, I wasn't taking much notice of that website, I just tacked on to this thread because I didn't think it was worth...
I definitely have Raynaud's - I 'inherited it' from my mum along with a lot of allergies (well before ME days), particularly skin allergies. In my...
:hug::hug::hug:Rosie I'm sorry you are having such a very rough time. Please take care of yourself and I hope things improve for you and your mum...
Thanks for the laugh @Jaybee00, I needed it.
I had my 1st Pfizer last Friday. Only very trivial and expected side effects of a sore arm and a mild headache for a couple of days. I realise the...
Just want to say that I look forward each year to donating for this, and now to Brian Hughes (probably got the name wrong, you know who I...
Done
Oh dear, it looks like the most likely outcome is that WellMe is going to be taken over by CCIS Tauranga, becoming CCIS Wellington. I am no...
I use the inhaler and find it makes a definite difference to my functionality during winter time (I've started and stopped it a few times to...
I agree that this is a vital question, and I have no doubt it will help if patients give a lot of input/a lead to researchers. There are so many...
I saw an immunologist last week, and he told me Pharmac is likely to stop funding my Chromoglycate inhaler medication from October-ish and it will...
Major thanks for doing that transcript @Sly Saint, I know I'm not the only one who can't really handle videos, I find written material much...
The TV version of The Handmaid's Tale would be far too intense for me, but I read the book some decades ago and thought it was very good. You can...
Anyone got any recommendations for Science Fiction audio books? I enjoyed the Martian, and suspect I would enjoy Ted Chiang ( he wrote the short...
I look to smarter people than me for guidance on the importance of this. As a pwME with POTS, to me this looks like it could be very useful...
Thanks @Simbindi that's really useful. I think it must be the Summary Care Record I was half-remembering. From a brief skim it does sound like...
Does anyone know how to "lose" previous medical records entirely? can you refuse to let older records be used? I plan to return to the UK next...
Just to be clear, are you saying it is not worth signing this petition? If so, is there a simple action that NZ/international PWME can take which...
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