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So Dr Janet Scott says there has been a clinic in Glasgow for years, but I thought there had only been one specialist ME person, a nurse in Scotland for a long time. I have vague memories of an MEAction Millions Missing Event with two people dressed up as pandas. The point, at the time being...

Excellent news

They seem keen on OT assessments. It's probably good to explain why there is no specialist input for ME, as the CM (claim or case manager) kept referring to this in my daughter's report. She did have letters from a couple of NHS consultants she's seen re POTS. One of whom had been sent a form...

Thrilled that you've raised so much for MERUK. Well done. :emoji_balloon:

Have you been in Touch with MEAction Scotland? They've been having discussions with Scottish Parliament for years.

The 2019 one received over 4000 responses. https://www.actionforme.org.uk/resource/2019-big-survey-key-results/

I wonder if MEA promoted it to their members and on their socials, also MERUK. We could also ask BACME...

I am so sorry to hear this @Dolphin. I am grateful for the articles you post and your comments. I too find that some comments are unduly harsh at times.

The name Fiona Symington seemed horribly familiar: Yes wrote this dreadful BMJ article along with PGarner and another. https://www.bmj.com/content/389/bmj.r977

Wow, they treated the underlying mrdical problem and all her symptoms improved, even the neuropsychiatric ones!!

I wonder if the ME HASC liaised with the very active, well informed MEAction Sciotland Group that have had numerous discussios with the Scottish Parliament and key people involved in provision of health services. Or have they just barged in and ignored local groups as in Suffolk.

Thanks @Peter T. As Trish said As Trish says, this is a great opportunity for pwME in the UK to provide accurate and relevant information. The sections are: You and ME: 1-5, demographics, 6-13 your ME,such as when, why, how bad... Impacts of ME: 14-18 see above post, views of others...

Thanks for checking it for the rest of us.

REMINDER Survey closes next Tuesday, 27 Jan -(11.59pm) All questions are optional. Many are multiple choice/Tick box, such as: The Impact of ME All questions on this survey are optional. You can skip questions and whole sections.Please prioritise your health and stop when you need to. Q 14. How...

It struck me the other day that the NICE "Box 2 Symptoms for suspecting ME/CFS" does not include the fact that the person's ability to engage in occupational, educational, social or personal activities is significantly reduced from pre‑illness levels This is mentioned as one of the bullets...

Why can we not begiven more notice to contact our MPs!

Yes, this is an excellent article, thanks for posting it

The major disadvantage of needing wheelchair assistance at airports is the length of time you remain on the plane until the mobility assistance arrives. I had to wait for an hour at Heathrow once before I was transported to baggage claim, where my walker was available. My husband and daughter...

Good to see null results published

He joined the charity 10 years ago, first as a volunteer, working on several niche projects, before accepting a part-time position as the Website and Social Media Manager.As his illness stabilised and his functional abilities improved, Russell took a full-time position as Communications Manager...