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  1. Trails

    Elevated brain natriuretic peptide levels in chronic fatigue syndrome associate with cardiac dysfunction: a case control study, 2018, Newton et al

    I experience the exact same issue. As an aside, I just have to pass along to you my admiration for the interest you show in your wife's illness, and the obvious support you're providing her.
  2. Trails

    Coat hanger pain - any suggestions for relief please?

    Another unrelenting symptom for me. Oral prednisone works for me, but I'm aware that this is a controversial treatment.
  3. Trails

    Legs weakness

    Yes, leg weakness is a significant symptom of mine, along with coordination issues.
  4. Trails

    Ron Davis speaks at University of Texas at Dallas

    In my neck of the woods, I don't think CFS is a commonly assigned diagnosis. After seeing 3 primary care doctors and a handful of specialists, I still don't have a diagnosis (not that I've been pushing for one) and all of them just say that they don't know what is causing my illness. Several...
  5. Trails

    Too much salt creates an auto-immune type effect in the brain

    I eat loads of salt, also. Have no idea whether it's doing me good or doing me bad. What I do know is that I have preferred salt to sweets my whole life. To say that I often crave salt is not an overstatement.
  6. Trails

    The Courier Mail: Australian scientists prove CFS is real and have discovered a test for it

    Agreed. Anecdotally, I've been taking a calcium channel blocker (Verapamil) at high dosages (240 to 480mg/day) for about 30 years as treatment for cluster headaches. While they work for that purpose, if they are alleviating any CFS/ME symptoms, I'm not aware of it.
  7. Trails

    News from Scandinavia

    Apropos of nothing, just wanted to let you know @Hip, that is great to see you here :)
  8. Trails

    Phase III Rituximab Trial - News

    :(:(:(:(:(
  9. Trails

    Does anybody else walk as though they're drunk?

    Yep. And I feel uncoordinated when walking. And I'm abnormally clumsy. Been this way for three years after a lifetime of above average coordination.
  10. Trails

    Poll: When during the day do you have the most energy? That is when you are not in relapse, and not sick with the flu

    You know, it's strange because like most things with this illness, my answer to this question has varied over time. When I was at my worst (about 3 years ago), I would have said that I definitely had more energy in the evenings. Now, I have most energy in the mornings and how long that lasts...
  11. Trails

    Anyone get root canal (either before or after ME onset)?

    I had my first and only root canal a few months before the onslaught of most of my symptoms. I have no reason to believe that the former precipitated the latter.
  12. Trails

    Getting Glasses When You Have ME-related Variable Eyesight

    When most of the my symptoms hit me hard in 2014, vision problems were among the most noteworthy. Prior to that, I had always had better than 20/20 vision. Since 2014, vision issues have steadily improved somewhat. Fluctuating vision clarity. Reduced ability to focus on moving objects...
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