I have picked out the bits of Robert's post that I want to comment on.
First, I totally agree about the mobility aids and other aids. I too am embarassed and ashamed (and I know I shouldn't be) to be seen using the aids that I use. There is no way at all that I ever would choose to use them is...
That is true for me too. I have the opposite of what I used to experience when well. The more I do the worse my sleep is and if I am careful to keep within my limits my sleep is better. However I always do as much as I can within my limits so haven't tested what happens when I do a lot less than...
I don't have the energy to read all the comments so sorry if I am repeating something. If you are looking for evidence and carry out an experiment over a period of time please make sure that you are clear that correlation isn't always proof of causation. I say that because I wear a pedometer...
I don't fit into either. I was 25 when I got ill. If it were two causes then the distribution tails would cross I suppose. My son had post viral fatigue and was part time at school for a year. He was about 14 so right at a peak. He is recovered now.
Yes, spoken language too. If I'm tired then sometimes what people are saying to be makes no sense or it just goes over my head and I realise that I haven't taken any of it in.
For me speaking the two things most common are completely forgetting a word. I go to the pigeonhole where the word...
Yep, I have a lot of nausea and it is worse the more tired I get. I get the wanting to be sick if you talk thing too. Sometimes it is so bad that I am sick in the morning.
Wondered if you'd tried acupressure wristbands. They are made for travel sickness and some people use for morning sickness...
Just listened. Thanks Gary, it was a good interview with Jen Brea and great to hear that song too. It was interesting to hear Jen with a longer interview allowing more to be discussed. It felt like a calm episode although very moving at times. I too found the part where she said that the loss...
Ok. After reading @JaimeS posts I understand that relapsing remitting in this case means varying rather than periods of wellness or remission s I have chosen option 2
Hard to decide. Relapsing remitting implies that I would have periods of better health. The only remission of symptoms was when I was pregnant. Other that that it is the bad or worse type of fluctuating with a steady downward decline. It seems I never quite get back to the previous level with...
I have experimented with eliminating various things in my diet and my big culprit was lactose. I still have digestive issues so I don't know if there are other more minor intolerances. I have a list of things that I know make my digestion worse so I avoid those but I suspect that it's an...
I bought a cheap microfibre one for my son to take to uni from John Lewis and I think that was light. Wasn't a two parter though. We have a light duvet and think it is a a hollowfill one but we've had it quite a long time. I have no idea how you get figures for the weight. It would make sense to...
For the benefit of those who have trouble swallowing tablets, the result of extensive experimentation is that I find it easier to swallow tablets with fizzy not still water and then follow it up with either food or chew gum for a while. I was finding that tablets were sticking in my throat and...
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