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  1. fds

    Psychomotor Vigilance Test - discussion and testing

    Interesting, 490 over 25 attempts for me I am sure I would score differently for the touch pad on my laptop or a proper mouse.
  2. fds

    ME/CFS patients exhibit altered T cell metabolism and cytokine associations (2019) Mandarano, Hanson et al

    I thought this was a good presentation and as @Ravn said above it does help with understanding the paper
  3. fds

    Calling all physicists/science people

    huh? I am a physicist and physics hasn't cured me yet. This person isn't even using the words in the right context as many people have pointed out.
  4. fds

    MS society funds study of immune system to understand why pregnancy can alleviate autoimmune conditions, possible ME relevances

    I will be watching out for this. I certainly improved in pregnancy and have always thought that it would be an interesting route to follow.
  5. fds

    Building an evidence base for management of severe ME (including sleep management)

    I have picked out the bits of Robert's post that I want to comment on. First, I totally agree about the mobility aids and other aids. I too am embarassed and ashamed (and I know I shouldn't be) to be seen using the aids that I use. There is no way at all that I ever would choose to use them is...
  6. fds

    Building an evidence base for management of severe ME (including sleep management)

    That is true for me too. I have the opposite of what I used to experience when well. The more I do the worse my sleep is and if I am careful to keep within my limits my sleep is better. However I always do as much as I can within my limits so haven't tested what happens when I do a lot less than...
  7. fds

    Building an evidence base for management of severe ME (including sleep management)

    I don't have the energy to read all the comments so sorry if I am repeating something. If you are looking for evidence and carry out an experiment over a period of time please make sure that you are clear that correlation isn't always proof of causation. I say that because I wear a pedometer...
  8. fds

    Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway…, 2014, Bakken+

    I think if the data is based on referral to specialist clinic in the UK then that is not going to be the same as incidence in the population.
  9. fds

    Two age peaks in the incidence of chronic fatigue syndrome/myalgic encephalomyelitis: a population-based registry study from Norway…, 2014, Bakken+

    I don't fit into either. I was 25 when I got ill. If it were two causes then the distribution tails would cross I suppose. My son had post viral fatigue and was part time at school for a year. He was about 14 so right at a peak. He is recovered now.
  10. fds

    Reading words incorrectly

    Yes, spoken language too. If I'm tired then sometimes what people are saying to be makes no sense or it just goes over my head and I realise that I haven't taken any of it in. For me speaking the two things most common are completely forgetting a word. I go to the pigeonhole where the word...
  11. fds

    Reading words incorrectly

    Yes, I find that happens when I am reading
  12. fds

    Issues w/nausea in PEM

    Yep, I have a lot of nausea and it is worse the more tired I get. I get the wanting to be sick if you talk thing too. Sometimes it is so bad that I am sick in the morning. Wondered if you'd tried acupressure wristbands. They are made for travel sickness and some people use for morning sickness...
  13. fds

    The ME Show

    Just listened. Thanks Gary, it was a good interview with Jen Brea and great to hear that song too. It was interesting to hear Jen with a longer interview allowing more to be discussed. It felt like a calm episode although very moving at times. I too found the part where she said that the loss...
  14. fds

    What is the course of your ME/CFS?

    Ok. After reading @JaimeS posts I understand that relapsing remitting in this case means varying rather than periods of wellness or remission s I have chosen option 2
  15. fds

    What is the course of your ME/CFS?

    Hard to decide. Relapsing remitting implies that I would have periods of better health. The only remission of symptoms was when I was pregnant. Other that that it is the bad or worse type of fluctuating with a steady downward decline. It seems I never quite get back to the previous level with...
  16. fds

    Has a gluten free diet helped your symptoms in any way?

    I have experimented with eliminating various things in my diet and my big culprit was lactose. I still have digestive issues so I don't know if there are other more minor intolerances. I have a list of things that I know make my digestion worse so I avoid those but I suspect that it's an...
  17. fds

    How to find a lightweight duvet?

    @Wonko Yes, the amazon dimensions and weights can be very deceptive
  18. fds

    How to find a lightweight duvet?

    I bought a cheap microfibre one for my son to take to uni from John Lewis and I think that was light. Wasn't a two parter though. We have a light duvet and think it is a a hollowfill one but we've had it quite a long time. I have no idea how you get figures for the weight. It would make sense to...
  19. fds

    Tip for people who can't swallow large capsules

    For the benefit of those who have trouble swallowing tablets, the result of extensive experimentation is that I find it easier to swallow tablets with fizzy not still water and then follow it up with either food or chew gum for a while. I was finding that tablets were sticking in my throat and...
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