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Well there is as they can use clinical best practice (can't quite remember the exact phrase at the minute) and gold standard evidence based etc. in ither words - PACE.

Having a few health issues at the moment. But it will definitely not be a report.

When we're fighting for our lives does push-crash really have any legitimacy in a defence to not following NICE Guidelines NG206?

Who's definition of "Living" are they using. Anyone know?

Thanks Kitty.

Does anyone know what the outcome of this judicial review was or did he die before it began?

Thanks Mij

Has anyone seen any UK reports of this?

Is this helpful? Saw a local news item about the merger and this Gene Therapy Trial this morning. https://www.bbc.co.uk/news/articles/cvgp0q89y77o Here's what Professor Moin Saleem is currently working on...

I know the feeling.

A link on DPACs Facebook page to this page would be enough I guess. I don't have access to my Facebook account since I lost my internet connection and phone when I couldn't pay my bills, so email address and phone number are different now.

In view of recent developments, I've decided to turn the complaint I've been working on into a report and take legal advice on the entire situation and the best course of action going forward. Will update then.

Yes. DPAC should also know. I don't have the spare capacity for this though.

Informed consent to be part of research through a digital long term conditions clinic app, must include possible harm? How will they be recording these harms when they occur, and will they be published? Where on earth is the ethical oversight is in any of this?

Yes agreed. But this now also includes severe ME/CFS patients without any research evidence at all for safety or effectiveness except the FINE trial! Sister trial to PACE. They've only just removed the activity and exercise in the last week because of 'feedback'. They've been caught...

Why all this matters: from Jesse Nicholls of Matrix Barrister Chambers, who gave evidence to the Work and Pension Committee. Warning content includes discussion about deaths and harm...

On 7 August ME Association Welfare expert published this: https://meassociation.org.uk/2025/08/welfare-reform-when-promises-clash-with-practice-what-stephen-timms-didnt-say-about-co-production/

New advisory panel being set up. Sector calls for more than 'tokenistic' co-production https://meassociation.org.uk/2025/08/welfare-reform-round-up-new-independent-disability-panel-applications-opening-soon/

https://meassociation.org.uk/2025/08/welfare-reform-round-up-new-independent-disability-panel-applications-opening-soon/

I've been looking into the funding for this prompted by Trish's comments earlier. https://open-oh.com/blog/2024/09/09/how-we-are-able-to-support-the-development-of-open-oh/ The link in that page takes you to this govn’t page. £1.5 Million investment to improve in-work health services as part...