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  1. ivorin

    How chronic administration of benzodiazepines leads to unexplained chronic illnesses: A hypothesis, 2018, LaCorte

    Well this certainly makes me feel a bit worried. Been taking them for 18 months now, they are the only thing helping me since my illness got severe. Guess it can always get more severe. FML
  2. ivorin

    Right Arcuate Fasciculus Abnormality in Chronic Fatigue Syndrome, 2014, Zeineh, Montoya et al

    Exactly my thoughts, what happened with this :(
  3. ivorin

    Right Arcuate Fasciculus Abnormality in Chronic Fatigue Syndrome, 2014, Zeineh, Montoya et al

    So, can anyone explain to me why this isn't used as a potential biomarker, or even in the pipeline as one? Am I missing something as usual?
  4. ivorin

    Article "Mast Cell Activation May Underlie 'Chronic Fatigue Syndrome'"

    I have been diagnosed with MCAS in addition to my ME because of high prostaglandine values but have felt nothing but worse on any of the various MCAS medication regimes. Going only from personal experience, I think they are jumping the gun and seeing it in everyone because it can so easily be...
  5. ivorin

    Rituximab 'causes impaired immune function, Griffith study says'

    Hi Melanie, I am currently on IVIG and am being considered for Ritux after that. Is there any reason you are so adamant about RTX not being helpful to a subset of CFS patients? Was there something else published other than the outcome of the big trial being a fail? I haven't been tuned in as I'm...
  6. ivorin

    Phase III Rituximab Trial - News

    As long as they understand who it was helping, it may prove useful none the less - just hope it doesn't scare off other researchers.
  7. ivorin

    ME Infographics

    Fair enough :)
  8. ivorin

    ME Infographics

    Is it illegal to say Phoenix Rising? Why are we Lord-Voldemorting?
  9. ivorin

    Who is Simon Wessely?

    Disgusting man.
  10. ivorin

    Exercise-induced changes in cerebrospinal fluid miRNAs in Gulf War Illness, Chronic Fatigue Syndrome and sedentary control subjects, 2017, Baraniuk

    Can someone comment as to the relevance of the results in relation to the potential patophysiology of ME? They mention neurotoxicity in relation to GWI, but do not delve into any conclusions regarding ME.
  11. ivorin

    Selfhacked: 'Dr. Jarred Younger: Cutting Edge Research on CFS, Neuroinflammation, Pain, and Fatigue'

    The whole leptin things seems a bit undefined as of yet. I'm skinny, have severe ME and POTS and my leptin is very low. Now, he does say the fluctuations are the important factor but I can well recall that the day I took my leptin levels I felt quite bad, so I'm not sure it's a potential...
  12. ivorin

    Research Conference in Oslo 20-21 nov with Davis, Hornig & Mella

    Let's have us some Ritux hints, shall we?
  13. ivorin

    Neurometabolites in anterior cingulate cortex in CFS:magnetic resonance spectroscopy study @ 7 Tesla

    And let's hope she does pursue a PhD in the field :)
  14. ivorin

    Neurometabolites in anterior cingulate cortex in CFS:magnetic resonance spectroscopy study @ 7 Tesla

    Still seems to show what we'd expect. Higher levels of excitatory transmitters that contribute to a "wired but tired" state. Is it really that bad? I almost feel encouraged that they got these results even from a badly defined patient cohort. Am I completely off here?
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