Well this certainly makes me feel a bit worried. Been taking them for 18 months now, they are the only thing helping me since my illness got severe. Guess it can always get more severe. FML
I have been diagnosed with MCAS in addition to my ME because of high prostaglandine values but have felt nothing but worse on any of the various MCAS medication regimes. Going only from personal experience, I think they are jumping the gun and seeing it in everyone because it can so easily be...
Hi Melanie, I am currently on IVIG and am being considered for Ritux after that. Is there any reason you are so adamant about RTX not being helpful to a subset of CFS patients? Was there something else published other than the outcome of the big trial being a fail? I haven't been tuned in as I'm...
Can someone comment as to the relevance of the results in relation to the potential patophysiology of ME?
They mention neurotoxicity in relation to GWI, but do not delve into any conclusions regarding ME.
The whole leptin things seems a bit undefined as of yet.
I'm skinny, have severe ME and POTS and my leptin is very low.
Now, he does say the fluctuations are the important factor but I can well recall that the day I took my leptin levels I felt quite bad, so I'm not sure it's a potential...
Still seems to show what we'd expect. Higher levels of excitatory transmitters that contribute to a "wired but tired" state. Is it really that bad? I almost feel encouraged that they got these results even from a badly defined patient cohort. Am I completely off here?
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