I believe that the main blame should go to GP's. Patients spend years visiting their GP's and because the labs don't show anything they don't get...
I've used Whisper AI to generate .srt subtitle files for my videos and audiobooks (I know!). The Translation may not be perfect but you can then...
Doesn't seem that any media picked up this story. I got today in the mail the printed magazine from the "Finnish Association of People with...
Us Nordics are always in the top positions of the "Happiest people in the world" rankings. We pride ourselves for having the best social security...
I kept record with my Vivoactive few years ago but stopped because it ate too much of the battery. I also had quite often dips to less than 80%...
Downloaded fine with Parabolic.
I've noticed this kind of pattern from my wearable sleep data. REM sleep very often initiated every 1.5h and after that waking up. Few days ago it...
No dizziness with my OI. And I can have very fast changes. Sometimes 50-70bpm heart rate raise in about 1-2 minutes after standing and staying...
I'm also lucky to live alone without any external pressure to practice sleep hygiene (I do shower every day though!), and I can let my sleep...
I've been using Vivoactive 4 for 3 years and I find it fairly accurate when it comes to times and waking ups during sleep. I have a sensor from...
When I was more severe I too did have something similar for about 12 months. And I found it very difficult to explain. Violent whole body twitches...
3 weeks old local news documentary from Toyama prefecture which follows the daily life of a 30 year old man suffering from Long Covid for 2 years....
As a non-native english speaker I shouldn't suggest anything, so how about 'ME/CFS Digest'? That way people who are searching for digestion...
Could be cultural/language differences that are playing a part too. As for me, it's very difficult to think that it's not showing scepticism, in...
@Kalliope I don't know but this was published by The Finnish Association of People with Physical Disabilities which is I believe the largest in...
From the paper, one patient explains how they were diagnosed. Translated by me. ”By private doctor. According to TAYS fatigue workgroup the...
Didn't read all the 100 pages but checked parts that seemed interesting. 308 people with ME/CFS (G93.3) diagnosis answered the web survey. 85.1%...
I realise that just about everyone is talking about magnesium deficiency when talking about magnesium, but what about hypermagnesemia? I had a...
You could also think this as if you were predisposed to have this condition, if there is such thing, perhaps you would have gotten it with another...
I got my whole genome sequenced 2 years ago by Dante Labs, the lab that OP mentioned. Haven't found many good leads that would explain my illness...
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