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    Canadian Guidelines for Post COVID-19 Condition

    I just wanted to add that these guidelines were developed by Cochrane Canada and McMaster GRADE Centre at McMaster University. Maybe this was talked about in another thread but I couldn’t find anything. As mentioned, they recommend CBT for individuals with post Covid syndrome and PEM...
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    Melinda Gates resigns from Gates Foundation

    It would be really helpful to have numbers of people with ME and LC in different geographical areas. I know it would be diagnosed really differently or not at all in some countries but there must be a way to report this? Are there good stats? I’ve heard a global estimate before for ME but it’s...
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    UK: Long Covid protests calling for more research, Wed 9th March 2022

    :angelic: MEAction is doing a lot of amazing work right now but I don’t see any millionsmissing protests planned for 2022. Possibly because of covid like last year but they also seem to be very busy with other types of events. I do think large but less organized protests would complement all...
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    UK: Long Covid protests calling for more research, Wed 9th March 2022

    Can we all jump on this globally and make it as large as possible? It seems like the right time to finally have a loud protest, not a quiet sit in awareness day but a chanting with signs proper angry protest. ? I haven’t seen any other planned protests but maybe there are, I’m not that...
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    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    This subject makes me think of MS, not that microcirculation has been implicated, just that reduced cerebral blood flow has been. I don’t follow the research but I know it’s been questioned as part of the pathology of symptoms like fatigue. There was a proof of concept trial...
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    Multiple Sclerosis and ME/CFS - similarities, differences, misdiagnoses

    Based on the responses I’m feeling lucky to have been diagnosed with ME first. It was almost 10 years with ME before MS symptoms popped up so I have that history to refer to. I just don’t want the diagnosis to be taken away arbitrarily, it matters to me. There might be treatments for ME in the...
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    Multiple Sclerosis and ME/CFS - similarities, differences, misdiagnoses

    Mod note: we have broadened the scope of this thread which was originally just about the possibility of having both MS and ME/CFS. Is anyone living with both MS and ME and is there any real reason (research based) to believe that you can’t have both? I might have both, the reason for my...
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