Hi and thanks @Sly Saint for tagging. Just to give a bit more detail - this initiative is not being led by MEAction UK - it's a project from...
I'm afraid I don't know @MEMarge . Since MEAction UK stopped being a member of Forward-ME I don't get to see minutes or hear meeting reports any...
@MEMarge - apologies for the delay in getting these to you, we've been rather busy the last couple of weeks with all the various things going on,...
Hi @MEMarge , just to let you know I've emailed Simon Chandler (Chair of Forward-ME) to make sure he's aware of your request and to say #MEAction...
Thank you for pointing that out! I misread the title. Still sneaky of them but a different issue from what I thought.
-edit- ignore my post, it's pre coffee. - end edit- Wait a second... It's also saying there are no rapid responses now . Sigh, time to write...
I'm sure there is a discussion I've not seen on s4me on what is considered a better number to use? Anything we claim, we need to be able to back...
Hi @Andy , Author of that piece here. We expect most candidates who knock on doors to have little to no knowledge of ME, so providing a figure...
If anyone knows which platform this is on, that'd be really helpful...
It's been corrected now - Added at the bottom of the article: "This article was amended on 12 March 2024 to replace an incorrect hyperlink"
Does anyone really think the authors of the original paper paid £4k to make it open access? Totally unrelated, but was it one or was it two of...
I'm wondering if a text only disclaimer isn't discriminatory against the blind.
I have it on good authority that NICE's rebuttal paper has now been accepted for publication - no ETA on when it will be published though.
#MEAction UK's letter to the BBC. https://www.meaction.net/2024/01/22/meaction-uks-letter-to-the-bbc-over-the-show-dragons-den/
NICE have now shared with us that they submitted their own rebuttal paper direct to the JNNP and are awaiting a response. Edit: They are happy for...
@Andy beat me to it ;)
https://www.meaction.net/2023/09/19/jnnp-to-publish-edited-rapid-response-by-meaction-uk/ The JNNP have now agreed to reinstate, an edited...
Yes, Subject Access Requests are like FOI requests, but specifically requesting information about <yourself> (it comes under GDPR). You can't...
Minor update from MEAction UK. https://www.meaction.net/2023/08/21/meaction-uk-interim-update-on-jnnp-complaint/ We've had our complaint...
Of particular interest to people would be this post from a previous BMJ rapid response editor....
Separate names with a comma.
