They say that GET can be useful for 'a specific group' of patients, without specifying how such a group might be identified. Even if it has helped...
I agree. The scale should be able to show, 'these patients don't get much PEM, but how much activity do they sacrifice for this?
May be we can avoid the problem of fewer symptoms because excessive activity is avoided, by asking how much a patient can do before they get PEM....
Thank you, Leonard. Like Trish, I have a big problem with use of the 'fatigue' word especially as a habit is creeping in in various papers...
The danger is we start defining PEM as “whatever it is that separates us from every other diseases” rather than focusing on what are the common...
Yes, Kitty, I agree we need a more expanded list. After all, research is to be based on this.
As a trigger for PEM we also need to consider adding sensory overload. This can arise from social interaction, sound sight exposure to chemicals...
The De Paul questionnaire is inadequate to describe the symptoms of PEM. It fails to capture the extraordinary nature of PEM and misses out on...
Jonathan Edwards, you say, 'There was also a suggestion that there is scientific evidence for GET being bad for patients but the reality is that...
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