Thanks for posting the minutes @Nightsong. They need thorough reading but noticed immediately how few MPs attended. I wish the apologies had been...
Perhaps if it had been acknowledged how many people were damaged by the covid vaccines to the extent that they cannot work, it would not be such a...
Any news on the APPG meeting yesterday? I hope someone tried to push to discover when the delivery plan will be presented since the last mention...
I have been wondering recently about how much my lowered capacity is due to reduction of function because of worsening ME or deterioration due to...
Apologies. I came across this and started to write. Am crashing so not completed. By chance I came across our unread copy of the Sunday Times...
Ditto about not reading recent comments. What I did do today was write to my new MP with the date of the next APPG meeting ( 5th March, a week...
I forgot to add that I wore a neck brace for several years which made a big difference for me in preventing dizziness and nausea, and earphones...
I lay in the back as best I could when travel issues were at their worst but always wore a seatbelt. I think I sat in one seat with the belt...
Am replying to myself but don't yet have the date of the next APPG meeting. I have tracked down the draft minutes vie AfME link....
Sorry- I've missed some of the thread but do we have a date for the next APPG? i wrote to my MP before the last one and was told by his team he...
I had 2 xAZ and 1 Pf. I reacted badly to both types of vaccine and also made few antibodies to covid from the AZ vaccine. I was sent to a major...
I attended a weekly tai chi and qi gong class for 10 years prior to having ME. I loved it. Remembering the forms was intellectually challenging...
@Mij Hope your severe pain does not recur and you are over it quickly : and thank you for the tip about Acyclovir. I took it for ME for a while...
Very glad that you are recovering well @Mij and that your illness was mild. My mother had it when in her 80s and only knew about it because the...
Great video especially if you have OI as I do. I intend to buy Peter Rowe's book ' Orthostatic Intolerance'. He links OI to hypermobility which I...
I wonder if you can also take into account that people's skills at using the internet vary considerably which will impact how and what use they...
There was an article in the Times last Thursday Jan 16th which contained a short paragraph referring to Maeve's inquest. " A Devon coroner...
I have still not restarted arip for specific reasons not related to it and probably won't for a while. I wanted to report on the persistence of...
This looks amazing. £7876.54 has been raised for ME Research UK through this scheme according to its blurb. I can't get out to shops so buy online...
I was admitted to hospital and had a heart examination under anaesthesia. The anaesthetist visited me the day before and was receptive. I would...
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