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  1. Marylib
    Post

    Advocacy Action: Urge your Representative and Senators to Support Improved Coverage of Clinical Trials!

    Here is one that just came up...
    Post by: Marylib, Jun 5, 2019 in forum: Advocacy Action Alerts
  2. Marylib
    Post

    Solve M.E. webinar on 28th May re Whole Genome Sequencing and Analysis of ME/CFS

    Moved post Meanwhile, I just saw this - a genetics study which seems to have something in common with several research papers recently....
    Post by: Marylib, Jun 3, 2019 in forum: General ME/CFS news
  3. Marylib
    Post

    ME/CFS International Research Symposium, March 2019, Australia

    All I have to say is, beware of doctors who think that fooling with your thyroid hormones can help you be "less fatigued." I ran into one of those...
    Post by: Marylib, Jun 2, 2019 in forum: ME/CFS research news
  4. Marylib
    Post

    IiMER International Conference Week London 2019

    Merged thread If anyone has time, energy or brain cells, there was a twitter feed from the Invest in ME conference in London. No summary...
    Post by: Marylib, May 30, 2019 in forum: ME/CFS research news
  5. Marylib
    Post

    #OMFScienceWednesday - collection of the posts

    Has anyone seen this yet? [MEDIA]
    Post by: Marylib, May 29, 2019 in forum: General ME/CFS news
  6. Marylib
    Post

    New Zealand: ANZMES

    We may be a bit slow in replying at times. Not intentionally, by any means. I agree that Warren is an excellent researcher and advocate for us in...
    Post by: Marylib, May 29, 2019 in forum: News from organisations
  7. Marylib
    Post

    New Zealand: ANZMES

    I completely understand. Fortunately for me, I was advised to stop work after my diagnosis. I am still severely ill much of the time, however. I...
    Post by: Marylib, May 29, 2019 in forum: News from organisations
  8. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Yes, I am afraid that it may have been a rush job, because of the deadline for ME Awareness Day. MEISS wears multiple hats. The article by Prof...
    Post by: Marylib, May 23, 2019 in forum: Regional news
  9. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Our editor of the MP, has had some personal setbacks from time to time. She is alway very apologetic about not being able to attend to...
    Post by: Marylib, May 23, 2019 in forum: Regional news
  10. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    So sorry ANZMES was behind the times with this. We were focused on our media release for ME Day. We just this morning sent in our reply and I am...
    Post by: Marylib, May 23, 2019 in forum: Regional news
  11. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Hi Rose, I am on committee but I haven't noticed that yet. The thing with Anzmes is that if we broaden our scope too much to include all the...
    Post by: Marylib, May 23, 2019 in forum: Regional news
  12. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    I think Wendy's effort in this is called the Rest Assured Respite Charitable Trust. I hope it is a great success!
    Post by: Marylib, May 23, 2019 in forum: Regional news
  13. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    I recall that there was a typo somewhere on that site, but I don't know if it has been corrected yet or not. Sorry, I have cognitive problems so I...
    Post by: Marylib, May 23, 2019 in forum: Regional news
  14. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Anzmes has already submitted for the first round, so that is good. I am not sure if MEISS has submitted yet but I can find out.
    Post by: Marylib, May 23, 2019 in forum: Regional news
  15. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    I have met many of her colleagues personally at a conference in San Francisco in 2014, as well as corresponding with some by email, and I can...
    Post by: Marylib, May 23, 2019 in forum: Regional news
  16. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Many people are hoping that we can get approval for cannabis. Many patients are doing it on their own, the old fashioned way. I used to do it this...
    Post by: Marylib, May 23, 2019 in forum: Regional news
  17. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Yes Ros does what she can with very little time. I think the whole nomenclature thing in terms of ME. ME/CFS or cfs/ME has to do with whatever...
    Post by: Marylib, May 23, 2019 in forum: Regional news
  18. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    If you remind me, maybe I can find a way. But all I seem to have is a link to the article originally published by the Star. But remind me and I...
    Post by: Marylib, May 23, 2019 in forum: Regional news
  19. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Oh how disappointing that you can no longer see the article written by Prof Warren Tate. It was very good.
    Post by: Marylib, May 23, 2019 in forum: Regional news
  20. Marylib
    Post

    News from Aotearoa/New Zealand and the Pacific Islands

    Yes apparently we were only able to get space in The Star in Dunedin. But there was a good article in there written by Prof. Warren Tate.
    Post by: Marylib, May 23, 2019 in forum: Regional news
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