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Here is one that just came up https://www.meaction.net/2019/06/05/we-need-effective-strategic-and-respectful-engagement-from-cdc/?fbclid=IwAR1gWI_hte0fEeGgSUlSHwaqZqeXWRyFcUN6XZcnWC1yfR3s9mIy8T5fNAM

Moved post Meanwhile, I just saw this - a genetics study which seems to have something in common with several research papers recently...

All I have to say is, beware of doctors who think that fooling with your thyroid hormones can help you be "less fatigued." I ran into one of those before I was diagnosed in NZ. And they are everywhere. The current flavor of the month is giving you T3 or liothyronine. While stranded in the USA...

Merged thread If anyone has time, energy or brain cells, there was a twitter feed from the Invest in ME conference in London. No summary available yet, but Ros Vallings has been doing one and is there now. If interested check the ANZMES website, as it will be posted there as soon as possible...

Has anyone seen this yet?

We may be a bit slow in replying at times. Not intentionally, by any means. I agree that Warren is an excellent researcher and advocate for us in NZ. Will have a rest now. Plan to rest a good deal in the coming weeks to preserve my own ability to function at all.

I completely understand. Fortunately for me, I was advised to stop work after my diagnosis. I am still severely ill much of the time, however. I push myself on a regular basis. Am trying to change my ways. We try to update the website as often as possible. Hopefully soon.

Yes, I am afraid that it may have been a rush job, because of the deadline for ME Awareness Day. MEISS wears multiple hats. The article by Prof Tate was very good in the Star I think, and yes - he needs much more funding. I think the people with Open Medicine Foundation have money for good PR. I...

Our editor of the MP, has had some personal setbacks from time to time. She is alway very apologetic about not being able to attend to everything. I know her personally and I find her one of the most conscientious and hard working people I know. She served as Prez of Anzmes for many years while...

So sorry ANZMES was behind the times with this. We were focused on our media release for ME Day. We just this morning sent in our reply and I am hoping that the Listener will still publish it. I thought the other replies were great! I managed to see some photos of them. I am too ill to buy the...

Hi Rose, I am on committee but I haven't noticed that yet. The thing with Anzmes is that if we broaden our scope too much to include all the conditions that our members suffer from, we risk diluting out resources in terms of lobbying MOH for people who have been diagnosed with ME. This is sad...

I think Wendy's effort in this is called the Rest Assured Respite Charitable Trust. I hope it is a great success!

I recall that there was a typo somewhere on that site, but I don't know if it has been corrected yet or not. Sorry, I have cognitive problems so I am a bit slow sometimes.

Anzmes has already submitted for the first round, so that is good. I am not sure if MEISS has submitted yet but I can find out.

I have met many of her colleagues personally at a conference in San Francisco in 2014, as well as corresponding with some by email, and I can tell you that in my opinion, she is very well-regarded internationally. See the 2017 pediatric primer for example, as well as the International consensus...

Many people are hoping that we can get approval for cannabis. Many patients are doing it on their own, the old fashioned way. I used to do it this way until I went back to Oregon US for awhile, and there was a good medical program. The problem in NZ has always been that people might get...

Yes Ros does what she can with very little time. I think the whole nomenclature thing in terms of ME. ME/CFS or cfs/ME has to do with whatever country one is trying to make an impact in. There is an explanation of this in the 2017 Pediatric Primer, with contributions from several people...

If you remind me, maybe I can find a way. But all I seem to have is a link to the article originally published by the Star. But remind me and I will try to find out from Heather at MEISS. Sorry but I need reminders!

Oh how disappointing that you can no longer see the article written by Prof Warren Tate. It was very good.

Yes apparently we were only able to get space in The Star in Dunedin. But there was a good article in there written by Prof. Warren Tate.