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[Note: haven't posted in a long time, am cognitively not doing well, hope my writings make sense! will probably be unable to comment further, hope that's ok] This is a research group I would label as BPS or at least BPS light. They are part of a chronic pain research consortium...

Hi @JemPD, don't worry about the control buttons being on the back of the ear cup, they're pretty sturdy so nothing happens when you rest back on the pillow. The headphones don't get dislodged while you rest your head on a pillow either. I use them every single day and wouldn't be able to cope...

I know someone who was diagnosed with "psychogenic nonepileptic seizures". I feel like it's the MUS category of epilepsy, created to dump in all "unexplained" forms of epilepsy: anyone with outward signs of epilepsy but no sign of it on brain scans. This kind of epilepsy is no joke: apart from...

@Squeezy I'm housebound so I haven't been to shops for years, but when someone in the house is listening to music or something on tv that has unbearable sound/music, the Bose noisecancelling headphones do make it perfectly bearable to stay in that same room. So I would think the same could be...

@JemPD in my case, what bothers me the most are 1) loud noises and 2) a lot of different noises at the same time e.g. two conversations plus background noise, which makes my brain go haywire. When I wear my Bose noise cancelling headphones the loud noises are more than halved in intensity...

Bose seems to have a wordwide 30-day risk free trial ("return within 30 days for a full refund") on all their noise cancelling products (except for custom made products). https://www.bose.com/en_us/support/returns_and_exchanges.html I have Bose noise cancelling headphones (tried them out for a...

@Andy, did you mean Dr. Ungers CDC study? (published 2017) https://stacks.cdc.gov/view/cdc/47722 The figure that was shared a lot online was the one she presented at CDC Grand Rounds in 2016: figure is in the presentation slides, page 27.

@MSEsperanza I share your concern. The Belgian member of EUROMENE, Mira Meeus, is also strongly BPS. (see @Michiel Tack's article about the Belgian group working on Central Sensitisation Syndrome)

@anniekim Central Sensitisation explains "everything". That is the "beauty" of the philosophy. (Can you see my ironic use of quotation marks? :whistle:) The core of the symptoms, according to this philosophy (I refuse to call it a theory or a hypothesis), is pain and fatigue, but secondary...

Executive summary of the guidelines in English (translation by the Health Council itself, so I guess this is the official translation?) https://www.gezondheidsraad.nl/en/task-and-procedure/areas-of-activity/optimale-gezondheidszorg/mecfs

Although I do believe Younger knows very well what ME is, he usually mentions 'fatigue' as the subject of his studies. His lab is called Neuroinflammation, Pain and Fatigue Laboratory. Is that why he is using Fukuda? And does that mean that higher brain temperature causes 'fatigue' not related...

The "economic burden" argument is something that pops up in BPS research a lot. That is how they love to describe us, a huge burden on society, and the solution is, of course, "getting them active again". Problem solved. (Not saying these researchers are BPS, but this theme makes me suspect that...

Thank you for your reply @TrixieStix. :thumbup:

@TrixieStix Maybe a bit of a personal question, but did you always somehow feel like you didn't 100% fit the ME criteria? The reason I'm asking is because I always have this thought in the back of my mind: what if I have something else (e.g. something super rare (treatable) and that's why...

A list of his publications. o_O https://lirias.kuleuven.be/cv?u=U0073677

@Amw66 See my previous post! :) https://www.s4me.info/threads/petition-create-a-virtual-school-for-children-too-unwell-to-attend-school.2011/#post-36292

That is what Bednet is in Belgium, it's part of the official educational system. Free of charge.

My wild guess is that this is the trailer. (Google Translate helped me figure it out.) Even though we don't understand what they're saying, I think we probably know what they're saying. It's all too similar. Btw, I love those reclining wheelchairs!

Something like this has been around in Belgium for over ten years. It seems to be pretty successful. Children can follow classes in real time online, with live interaction, so they remain in touch with their classmates and teachers. Exams and homework are done online. (I'm not sure if any young...

Available in Belgium, with Dutch/French/German subtitles.