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thanks for the continuous supply of chuckles @rvallee not a fan of what you are describing, but the way you do it sure make things easier!

4 people from the working group have taken dissent. Their statements with their reasoning are published in full in the first chapter of the draft. Tom Farmen Nerli is specialist in rehabilitation and says the guidelines will have a nocebo effect, encourages avoidance and removes hope of...

The draft has now been published online. https://www.helsedirektoratet.no/retningslinjer/utmattelse-langvarig-utmattelse-inkl.me-cfs-horingsutkast

Cidrap: Long-COVID symptoms persist for years in nonhospitalized adults quote: The findings suggest that recovery in nonhospitalized individuals may be slow and incremental, even years after infection. “Although most outcomes showed statistically significant improvements between...

Full title: Long-term health outcomes and risk factors for low self-rated health in non-hospitalised adults with post-COVID-19 condition: a 2.5 year cohort study Abstract Background Knowledge regarding the clinical course and prognosis in non-hospitalised individuals with post-COVID-19...

Happy to see this on the website: OUR COMMITMENT TO HEALTH & SAFETY The ISLC-PAIS Conference team are committed to ensuring a safe, inclusive, and science-based environment for all attendees and speakers. We are currently in direct contact with technical partners, to hire / barter Air...

Here is the article Emma Hampson responded to https://www.bacp.co.uk/bacp-journals/therapy-today/2025/articles-september/the-big-issue/

The draft of the new guidelines were supposed to be published last week for public review, but got postponed. Today the Norwegian ME Association shared the following message on Facebook (auto translated): Regarding the postponement of the publication of the consultation draft for new...

Excellent analysis and summary from Long Covid Advocacy. I hope it's ok to share a long quite: Wessely, Mendenhall and the Reproduction of Medical Power quote: It is important to note that Invisible Illness has an admirable aim: to challenge the ways medicine dismisses, marginalises, and...

Per Fink has written a response presenting his centre as rational, respectful and up to date on knowledge and competence: https://sundhedspolitisktidsskrift.dk/debat/11070-om-debatklima-faglighed-og-behandling-af-funktionelle-lidelser.html

https://www.cidrap.umn.edu/covid-19/research-ties-long-covid-kids-chronic-school-absenteeism-learning-problems quote: A large Centers for Disease Control and Prevention studysuggests that US school-aged children diagnosed as having long COVID are at 2.5 times the risk of related chronic...

Nicole D. Ford , Regina M. Simeone, Caroline Pratt, and Sharon Saydah Author affiliation: Centers for Disease Control and Prevention, Atlanta, Georgia, USA Abstract We examined functional limitations and illness-related chronic absenteeism (i.e., missing >18 days of school for health reasons) in...

Diane O´Leary says in a comment that she had a similar experience: quote: I had a similar encounter with Wessley, who was selected as a reviewer for an article on ME/CFS I submitted to Journal of Medical Ethics. Reviewers messed with that thing for a full year! Finally we got it into a form...

I was thinking more in general how repeated covid-infections will make clinical trials more complex as patients may risk getting a deterioration of their illness and/or new additional illnesses while testing whether or not a treatment improves their situation.

I wonder how deterioration of health due to repeated Covid infections in participants will be factored into clinical trials.

The Norwegian ME Association's fundraiser ME-fondet has donated 4 million NOK (296 161 GBP - 397 504 USD) to the Daratumumab study. That's 8 million NOK in total from the fundraiser to the study thanks to the effort from many! In a news update from the ME Association today, it's estimated that...

I listened to this podcast a while ago interviewing the author. Don't remember all the details. It was interesting to listen to an anthropologist's point of view of the history of post viral and neglected illnesses, but dapping a bit too much into mind-body stuff for my liking. But for those of...

The author Emily Mendenhall has today published more background information on Wessley's threats and more: Bluesky Blowup How the ME/CFS patient community is reading Invisible Illness Quote: The article was submitted and a lovely (but very junior) editor handled the article and sent it to...

I wonder if looking at the author list on papers from them could help? Like this one: https://www.tandfonline.com/doi/full/10.1080/02813432.2023.2235609

BJGP Life Book review: Psychology's Quiet Conservatism: How a Supposedly Woke Science Promotes Capitalism and Protects Privilege - by Elke Hausmann quote: Anyone who has read any of my previous articles will know that I am engaged with the discussions around long COVID and myalgic...