What is currently the best way for people in the UK to donate? Is @Joan Crawford's fundraiser still active? Or should i direct them to the English language ME fund page?
What is currently the best way for people in the UK to donate? Is @Joan Crawford's fundraiser still active? Or should i direct them to the English language ME fund page?
The Norwegian ME Association's fundraiser ME-fondet has donated 4 million NOK (296 161 GBP - 397 504 USD) to the Daratumumab study. That's 8 million NOK in total from the fundraiser to the study thanks to the effort from many!
In a news update from the ME Association today, it's estimated that 3 500 000 NOK (259 141 GBP - 347 816 USD) is still lacking, and the ME-fondet will work to get the study fully funded within the year.
Half of the participants have been recruited and half of the recruited have received their first infusion with Daratumumab or placebo.
The research team is also running a pilot study on severe ME-pasients and have expanded it with five more participants.
The donations page won't accept my phone number - it contains a limited list of prefixes, which only covers a few countries.The phone number is used for the receipt.Anyone have any ideas?
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