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  1. wingate
    Post

    USA 2024: Want to participate in MAESTRO? Chronic Lyme; Long Covid

    Nice article. Thanks for sharing!
    Post by: wingate, Apr 14, 2024 at 4:59 AM in forum: Recruitment into current ME/CFS research studies
  2. wingate
    Post

    NEWS: Chairman Bernie Sanders Releases Long COVID Moonshot Legislative Proposal

    Here is what I submitted: Thank you for your efforts to address the Long COVID crisis. The proposed Long COVID Moonshot legislation has the...
    Post by: wingate, Apr 11, 2024 in forum: Long Covid news
  3. wingate
    Post

    Tell the New York Times about ME

    Just came to s4me to post this link and it's already here, yay!
    Post by: wingate, Feb 5, 2024 in forum: Advocacy Action Alerts
  4. wingate
    Post

    News from the USA, United States of America

    Nice job, @Dakota15 !
    Post by: wingate, Jan 11, 2024 in forum: Regional news
  5. wingate
    Post

    How do I get a DNR/DNI?

    You might research POLST (Physician Orders for Life Sustaining Treatment) which is filled out by a healthcare professional. Some quotes from the...
    Post by: wingate, Jan 11, 2024 in forum: Home adaptations, mobility and personal care
  6. wingate
    Post

    Keeping Up Appearances - How to look good while feeling ill

    What kind of facial lotions and/or facial sunscreen do folks use? I have tried a number that haven't worked (bothered me and provoked various...
    Post by: wingate, Dec 5, 2023 in forum: Home adaptations, mobility and personal care
  7. wingate
    Post

    Reddit - Interesting posts on Reddit, including what some doctors say about ME/CFS

    If these posters are so convinced their views are correct, why not use their real names? Plus, it would save everyone some heartache - we could...
    Post by: wingate, Oct 8, 2023 in forum: General ME/CFS discussion
  8. wingate
    Post

    BPS attempts at psychologizing Long Covid

    Gaffney's tiresome refrain doubting that long Covid could result from a SARS-CoV-2 infection always comes back to his favorite (and seemingly...
    Post by: wingate, Aug 19, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  9. wingate
    Post

    New Documentary "Living with Chronic Fatigue Syndrome"

    Nice video, thanks for sharing. I liked the way they incorporated both the patient experience and the research being done by the German and...
    Post by: wingate, Jul 15, 2021 in forum: General ME/CFS news
  10. wingate
    Post

    Whitney Dafoe Updates

    I ask the very same question, @Perrier . If accounts like these do not spur these folks to action, what will? How much more clearly can this...
    Post by: wingate, Apr 28, 2021 in forum: General ME/CFS news
  11. wingate
    Post

    Preprint Autonomic conditioning therapy reduces fatigue and improves global impression of change in individuals with post-acute COVID-19 syndrome, 2021 Putrino

    Lol. One of the authors called it a 'meaningful start' on twitter. As you both mentioned earlier, they might examine why 60% of patients opted to...
    Post by: wingate, Apr 23, 2021 in forum: Long Covid research
  12. wingate
    Post

    [Blog] How Singer-Songwriter John Prine Helped Me Accept A Life of Illness

    I'm also a fan of "Jesus - The Missing Years". Lots of lyrics that make me chuckle. Great essay, Matt. Thanks for sharing. I also thought the...
    Post by: wingate, Apr 9, 2021 in forum: Relationships and coping
  13. wingate
    Post

    YouTube: An Existence Project - Paper Stop motion Animation About ME/CFS by Inga Topolnicki

    Thanks for sharing, @Kalliope! This was a beautifully-done video. I thought it illustrated the illness and what we go through so well. I think...
    Post by: wingate, Apr 6, 2021 in forum: General ME/CFS news
  14. wingate
    Thread

    USA radio: NPR/WHYY Episode: The Aftermath of Viruses

    Interesting show about the aftermath of viruses on NPR station WHYY this morning. One segment focuses on long COVID. Includes interviews with an...
    Thread by: wingate, Mar 26, 2021, 1 replies, in forum: Long Covid news
  15. wingate
    Post

    Anyone recommend an ultralightweight hoover?

    Personally, I don't find it awkward. They also have models with adjustable handle heights - that's how mine is. Unfortunately I can't recommend my...
    Post by: wingate, Feb 11, 2021 in forum: Home adaptations, mobility and personal care
  16. wingate
    Post

    Anyone recommend an ultralightweight hoover?

    Have you thought about a canister vacuum? I just got one after having an upright vacuum. The nice thing about the canister is that you only have...
    Post by: wingate, Feb 11, 2021 in forum: Home adaptations, mobility and personal care
  17. wingate
    Post

    #MEAction: PACING AND MANAGEMENT GUIDE FOR ME/CFS

    I can see how including this might give the perception that ME is psychosomatic. At the same time, "emotional energy" does seem like an important...
    Post by: wingate, Oct 29, 2020 in forum: General ME/CFS news
  18. wingate
    Post

    Preventing Post Exertional Malaise - online talk with Staci Stevens and Dr Mark Van Ness - Thurs 22nd Oct 2:30pm

    Thanks for posting the link, Gecko. Carolyn (did I catch her name correctly?) was a great facilitator. I have always found talks by folks from...
    Post by: wingate, Oct 26, 2020 in forum: General ME/CFS news
  19. wingate
    Post

    Australia: News from Emerge Australia

    Aside from the references to 'chronic fatigue' by the presenter, I thought the video did a good job of painting a picture of the illness. Had...
    Post by: wingate, Oct 22, 2020 in forum: News from organisations
  20. wingate
    Post

    Preventing Post Exertional Malaise - online talk with Staci Stevens and Dr Mark Van Ness - Thurs 22nd Oct 2:30pm

    Thanks for sharing- this looks interesting! I'll look forward to it coming out on YouTube!
    Post by: wingate, Oct 21, 2020 in forum: General ME/CFS news
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