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Thanks @Sly Saint Guys, Sci-hub is a pirate website, right? Has it ever been offline for legal issues? I want to donate but I know nothing about bitcoins. I know, techyidiot.

Thanks @Snowdrop , very interesting and sad. Genetic disorders and congenital abnormalities are amongst the most heartbreaking diseases and yet they have a pivotal role as investigation tool.

Hi guys, had been ill for the last 2 weeks with the darn flu and watched a lot of films on Netflix, couldn't sleep because of severe coughing. I watched Afflicted and by the second episode, I already knew this was not a serious documentary. The participants were treated like shite and the film...

I didn’t know that. I live in tropical Brazil, the burning sensation is 24/7, unfortunately.

Couldn’t watch it either, but I have listened to it. Her voice is very soothing. Thanks @Sly Saint for posting!

Thanks @Alvin, at least the games are being useful... It’s hard to tell if it’s good or bad Science without reading the article, but they do say ‘in the future’, so they are not claiming to have found a diagnostic test for Alzheimer’s Disease. I hope none of their subjects have another type of...

Sorry to hear that, pretty much my life these days... sending a hug across the big pond :hug:

I could write a book about my perimenopause! :arghh:

Sorry @ladycatlover, somehow I've missed you post. I have considered Erythromelalgia, but I don't have the redness that seems to be characteristic of this condition. I'll have a look on the website. Thanks!

Hi guys, I haven't been diagnosed yet and I could have Fibromyalgia and not ME, but I had an episode on February 2018 that was very scary and my symptoms have been different ever since. Suddenly my hands and feet became numb, then heavy and finally weak and I immediately crashed in bed. I also...

The CDC website under "Diseases & Conditions A-Z Index" calls CFS/ME an 'illness' and Fibromyalgia a 'condition'. Note: There is no entry for Migraine... The NHS Scotland website A to Z common illnesses and conditions calls CFS/ME a 'condition', Fibromyalgia a 'condition' as well as a 'syndrome'...

@Jonathan Edwards Thanks Prof. I guess Wikipedia is not well informed either but I agree with its definition: A syndrome is a set of medical signsand symptoms that are correlated with each other and, often, with a particular disease or disorder.[1] The word derives from the Greek σύνδρομον...

I don’t think Syndrome is adequate for describing something that doesn’t have a known cause. According to this CFS/ME is a Condition. https://www.healthwriterhub.com/disease-disorder-condition-syndrome-whats-the-difference/ Maybe it will be called a Syndrome when a cause is found.

Thanks Trish, I have met others like me on online forums, but I guess we’re not the usual case. I wish I could have hormone replacement therapy but it made migraines return and I really don’t need them on top of other issues. Still struggling with hot flushes and peripheral neuropathy.

Perimenopause symptoms began in my late 30's and menopause hit me at 51. Perimenopause was true hell

I like the work of Underhill https://www.sciencedirect.com/science/article/pii/S0306987715003825?dgcid=raven_sd_recommender_email#!

Many women undergo the same tortuous and torturous path of misdiagnosis and misunderstanding when entering perimenopause. A lengthy painful hormonal roller coaster that is often regarded as ‘the change’, as if this could explain, justify and solve it! Hormones are powerful molecules and hormonal...

We should always report any side effects, not only severe ones, to the official channel (Yellow Card Scheme in the UK) and to the drug manufacturer (they have proper channels for that). Doctors rarely know how drugs work (pharmacokinetics and pharmacodynamics) so it’s useless to tell them...

I agree, sometimes it takes a ‘non-peer’ reviewer to spot obvious flaws in an article. Knowledge conpartimentalisation and publication rat race spring to mind.

I think most doctors don’t understand that many patients with chronic conditions are depressed as a consequence of chronic pain, not the other way round. A friend had awful withdrawal symptoms and side effects from Venlafaxine and that has convinced me to never try it. I don’t need more...