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  1. aza
    Post

    Medically Documenting Disability in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases May 2019 Comerford & Podell

    Thanks @Sly Saint Guys, Sci-hub is a pirate website, right? Has it ever been offline for legal issues? I want to donate but I know nothing about...
    Post by: aza, May 27, 2019 in forum: Work, Finances and Disability Insurance
  2. aza
    Post

    Learning from tragedy--a baby lacking critical brain cells and a medical detective story (2019)

    Thanks @Snowdrop , very interesting and sad. Genetic disorders and congenital abnormalities are amongst the most heartbreaking diseases and yet...
    Post by: aza, May 27, 2019 in forum: Other health news and research
  3. aza
    Post

    Netflix "Afflicted" - ME included

    Hi guys, had been ill for the last 2 weeks with the darn flu and watched a lot of films on Netflix, couldn't sleep because of severe coughing. I...
    Post by: aza, May 27, 2019 in forum: General ME/CFS news
  4. aza
    Post

    Neuropathic pain

    I didn’t know that. I live in tropical Brazil, the burning sensation is 24/7, unfortunately.
    Post by: aza, May 7, 2019 in forum: Pain and Inflammation
  5. aza
    Post

    ‘Winter Hill’ Film Premiere in ME Awareness Week May 2019

    Couldn’t watch it either, but I have listened to it. Her voice is very soothing. Thanks @Sly Saint for posting!
    Post by: aza, May 4, 2019 in forum: General ME/CFS news
  6. aza
    Post

    This video game can detect early stages of Alzheimer's better than medical tests, researchers say

    Thanks @Alvin, at least the games are being useful... It’s hard to tell if it’s good or bad Science without reading the article, but they do say...
    Post by: aza, May 4, 2019 in forum: Other health news and research
  7. aza
    Post

    Why does fibromyalgia need a catastrophization scale?

    Sorry to hear that, pretty much my life these days... sending a hug across the big pond :hug:
    Post by: aza, May 3, 2019 in forum: Fibromyalgia and Connective Tissue Disorders
  8. aza
    Post

    Menopause and ME - what's your experience?

    I could write a book about my perimenopause! :arghh:
    Post by: aza, May 3, 2019 in forum: General and other signs and symptoms
  9. aza
    Post

    Neuropathic pain

    Sorry @ladycatlover, somehow I've missed you post. I have considered Erythromelalgia, but I don't have the redness that seems to be characteristic...
    Post by: aza, May 3, 2019 in forum: Pain and Inflammation
  10. aza
    Post

    'Heaviness' - could it be used as a measurement?

    Hi guys, I haven't been diagnosed yet and I could have Fibromyalgia and not ME, but I had an episode on February 2018 that was very scary and my...
    Post by: aza, May 3, 2019 in forum: Post-Exertional malaise and fatigue
  11. aza
    Post

    Can we call ME/CFS a disease?

    The CDC website under "Diseases & Conditions A-Z Index" calls CFS/ME an 'illness' and Fibromyalgia a 'condition'. Note: There is no entry for...
    Post by: aza, May 2, 2019 in forum: General Advocacy Discussions
  12. aza
    Post

    Can we call ME/CFS a disease?

    @Jonathan Edwards Thanks Prof. I guess Wikipedia is not well informed either but I agree with its definition: A syndrome is a set of medical...
    Post by: aza, May 1, 2019 in forum: General Advocacy Discussions
  13. aza
    Post

    Can we call ME/CFS a disease?

    I don’t think Syndrome is adequate for describing something that doesn’t have a known cause. According to this CFS/ME is a Condition....
    Post by: aza, May 1, 2019 in forum: General Advocacy Discussions
  14. aza
    Post

    Menopause and ME - what's your experience?

    Thanks Trish, I have met others like me on online forums, but I guess we’re not the usual case. I wish I could have hormone replacement therapy...
    Post by: aza, May 1, 2019 in forum: General and other signs and symptoms
  15. aza
    Post

    Menopause and ME - what's your experience?

    Perimenopause symptoms began in my late 30's and menopause hit me at 51. Perimenopause was true hell
    Post by: aza, May 1, 2019 in forum: General and other signs and symptoms
  16. aza
    Post

    Trial By Error: BMJ Amends Last Week’s PACE Article

    I like the work of Underhill https://www.sciencedirect.com/science/article/pii/S0306987715003825?dgcid=raven_sd_recommender_email#!
    Post by: aza, Apr 30, 2019 in forum: General ME/CFS news
  17. aza
    Post

    Why does fibromyalgia need a catastrophization scale?

    Many women undergo the same tortuous and torturous path of misdiagnosis and misunderstanding when entering perimenopause. A lengthy painful...
    Post by: aza, Apr 29, 2019 in forum: Fibromyalgia and Connective Tissue Disorders
  18. aza
    Post

    Article: The alarming hijacking of the BioPsychoSocial model

    We should always report any side effects, not only severe ones, to the official channel (Yellow Card Scheme in the UK) and to the drug...
    Post by: aza, Apr 28, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  19. aza
    Post

    Blog: Hilda Bastian, "Should We Trust Meta-Analyses with Meta-Conflicts of Interest?"

    I agree, sometimes it takes a ‘non-peer’ reviewer to spot obvious flaws in an article. Knowledge conpartimentalisation and publication rat race...
    Post by: aza, Apr 28, 2019 in forum: Research methodology news and research
  20. aza
    Post

    Article: The alarming hijacking of the BioPsychoSocial model

    I think most doctors don’t understand that many patients with chronic conditions are depressed as a consequence of chronic pain, not the other way...
    Post by: aza, Apr 28, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
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